I saw Kipps today. Platelets were 367,000 so they are climbing almost 2 weeks post IVIG and the rest of the lab is also good. Kidney function has been hit a touch by the cyclosporine (CSP), but is still well within the normal range. Blood pressure, also a concern with cyclosporine, was good too. And very importantly, no growth of the palpable nodes.
My last rituximab was July 8, so it has been 5 weeks.
This is the best news I could hope for
The question is what to do next and when to do it.
I will be scheduling a bone marrow biopsy soon that will help determine the plan.
I am planning a busy fall, so I hope to maintain the status quo for a long long time.
Great news Brian... status quo is a good plan.
ReplyDeleteNice to hear that everything is behaving - enjoy
ReplyDeletelove
Susan
Congratulations!
ReplyDeleteI have platelet-envy.
I'm glad for you. My CLL is acting up again, so I'm not in the mood to do much at all. Enlarging nodes in the abdomen again.
ReplyDeleteSurprising how painful and uncomfortable it can be.
Dr. Kipps mentioned the 'T' word to me at my last appointment: transplant.
I just don't know if I can get a complete remission. I haven't had that luxury for quite some time.
My fall will be spent hanging on as best I can.