Monday, May 30, 2016
Tuesday, May 24, 2016
Patient Advocacy in CLL (chronic lymphocytic leukemia)
Monday, May 16, 2016
What about Duvelisib for CLL (chronic lymphocytic leukemia)?
Saturday, May 14, 2016
A Therapeutic Escape For Cancer Advocates
This is a super conference run by friends of mine from Bag It, a wonderful nonprofit, in an amazing setting of beauty and tranquility and challenge for those doing cancer advocacy. Check out http://escape4advocates.org I was lucky to go twice, but will miss it this year.
Here are some questions to help you decide about attending from their home page.
Is escape right for you? Are you…
Wednesday, May 11, 2016
Music or at least the blues after a CLL (chronic lymphocytic leukemia) diagnosis
We are doing something entirely different- a feel good musical story of triumph after diagnosis and treatment.
This week in the Living Well with CLL/Taking Charge section of our website, we’ve posted an article highlighting a Canadian CLL patient living in Nova Scotia, Derek Caine, (aka Little Derek) who despite his diagnosis, expanded his world to include music and composition. You can read more about his story and listen to his musical endeavors here.
There are some great learning opportunities coming up:
NEW – May 19th WEBCAST at 1:00 PM EDT: Hosted by the Leukemia and Lymphoma Society, this 90 minute webcast on CLL will cover the latest information on CLL. Dr. Susan O’Brien from University of California, Irvine is the speaker and she will do a super job. Find out more information and register here.
May 14th at 9:30 AM in New York City, NY: Living Well With CLL is an educational conference in Manhattan hosted by Patient Power. You can find out more information and register here.There is no charge to attend.
May 21st at 7:30 AM in Needham, MA: The Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options will be hosted by the Lymphoma Research Foundation. You can find out more information and register here. There is no charge to attend.
June 16th at 6 PM in Salt Lake City, UT: The Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the Doctor series. You can find out more information and register here.There is no charge to attend.
In early June, I am off to EHA and honored to be speaking in front off the European hematology community, sharing the stage with Drs. Jeff Jones and Paulo Ghia and Stefan Stilgenbauer on the topic: The evolution of CLL management – is it time to re-evaluate our approach? I am bringing our small crew and will report the latest news.
In the meantime….
We are all in this together.
Brian Koffman, MD
Volunteer Medical Director of the CLL Society
Saturday, May 7, 2016
U.S. Rep. Mark DeSaulnier Shares that he has CLL (chronic Lymphocytic Leukemia)
The rookie Democratic Congressman Mark DeSaulnier who represents the Bay area of Walnut Creek and Richmond (very near where my oldest daughter and oldest two granddaughters live) announced yesterday that he has been diagnosed, treated and is a deep remission with his CLL.
Let's read his own words from the press release on his official website: https://desaulnier.house.gov
Being a Congressman is a very public job. Lots of potential "germ" risks from all the handshaking and community meals and more. He is on a plane even more than I am. And what a demanding schedule!
And still he and his doctors say it's all OK.
I respect and fully support my friends who choose to stay quiet for a myriad of good reasons, but I must admit I am thrilled when a public figure shares his diagnosis in the hopes of helping others.
Many of us have seen our world grow bigger and our purpose become clearer after sharing our diagnosis. Our welcome video in the bottom right corner of our home page reminds me of this constantly.
Thank you Congressman DeSaulnier for your brave and helpful disclosure. I wish you a long and healthy life.