tag:blogger.com,1999:blog-2741672436160438708.post4147326036445553918..comments2024-03-26T12:50:32.070-07:00Comments on Learning from and about cancer (chronic lymphocytic leukemia or CLL) by Dr. Brian Koffman: Dr. Forman April 16, 2009, my diet and supplements, and my comedy routine in Niagara FallsBrian Koffmanhttp://www.blogger.com/profile/13250684684103918493noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2741672436160438708.post-21936255256932242412009-04-29T17:54:00.000-07:002009-04-29T17:54:00.000-07:00Hi Brian
Have you done any research on raw milk or...Hi Brian<br />Have you done any research on raw milk or colostrum?<br />do a google search on Jerry Brunetti, he is on youtube too.<br />Would love to know what you think of his protocol. if you cannot find it I will email it to you<br />debDebbie Younghttps://www.blogger.com/profile/04596555525095399660noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-61969278133209632552009-04-28T15:48:00.000-07:002009-04-28T15:48:00.000-07:00Thoroughly enjoyed the laughs at the Falls Brian. ...Thoroughly enjoyed the laughs at the Falls Brian. Thanks very much. I'd much rather have my 11q deleted than lose my sense of humor.oh dadhttps://www.blogger.com/profile/03446463417706265761noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-41858708431764283582009-04-28T07:06:00.000-07:002009-04-28T07:06:00.000-07:00Hi Brian
What a lot of information in your last p...Hi Brian<br /><br />What a lot of information in your last post. I guess we are both at the stage where we sit back, get on with other things and just see what happens over a period of time. I don't fancy your diet though........well only the green tea bit! Good luck with it though.<br /><br />Glad the conference went well and look forward to hearing more about it.<br /><br />I was also sad to hear about Miriam; I grew up with dogs and the attachment is priceless.<br /><br />I will try and send you a post card from Israel.<br /><br />take care<br />SusanUnknownhttps://www.blogger.com/profile/13720845416855415878noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-81253231328955114892009-04-27T06:19:00.000-07:002009-04-27T06:19:00.000-07:00You do what you think is right! Tell us about the...You do what you think is right! Tell us about the "comedy routine," when you have time.Alisonhttps://www.blogger.com/profile/08391657290891973648noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-49707078848250153082009-04-27T04:33:00.000-07:002009-04-27T04:33:00.000-07:00You really hit the right note with your routine at...You really hit the right note with your routine at the CLL Conference!<br /><br />A day without a good belly laugh is a day not worth getting up for.<br /><br />You didn't make light of CLL. You were quite honest about its impact, BUT in a way that was therapeutic. Thanks for all the work that went into it.CLL SPOUSEhttps://www.blogger.com/profile/13642642389275280617noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-13098897057775959352009-04-26T23:57:00.000-07:002009-04-26T23:57:00.000-07:00Like you, I have (though perhaps you don't have an...Like you, I have (though perhaps you don't have anymore) the 11q deletion, developed after clonal evolution. My nodes started growing after my first treatment.<br /><br />I am a vegetarian as well, though I do eat an occasional piece of fish, and I do eat eggs and some dairy (primarily cheese, which I love).<br /><br />I will say that in all of my research, I have never found anything that suggests that a raw diet (which I find dangerous because of my low neutrophils and terrible over-all immune status), or any of the other things you mention, to be of any benefit for CLL patients, except, as you mention, the green tea (though it never, ever, helped my counts). Ditto the vitamin D.<br /><br />In fact, I think the green tea seemed to make my abdominal nodes larger and more painful.<br /><br />I have had three prior treatments and looking at another regime because of the persistent disease. I don't think a few handfuls of nuts and some vegan items will do anything for relapsed CLL.<br /><br />I have followed your choice with interest, and I guess you are in better shape than I am at this point. I am no longer a candidate for a transplant, and frankly from what I've seen, the success rate is pretty low. I've read that long-term survival after a transplant is about seven percent, with the quality of life often quite poor. <br /><br />And Dr. Hamblin writes of two of his patients who committed suicide because of the graft-versus-host disease. It sounds as though the 'cure' is worse than the disease.Barry B.https://www.blogger.com/profile/16562498733714000836noreply@blogger.com