tag:blogger.com,1999:blog-2741672436160438708.post4456447263398556063..comments2024-03-26T12:50:32.070-07:00Comments on Learning from and about cancer (chronic lymphocytic leukemia or CLL) by Dr. Brian Koffman: Lessons learnt but at what cost?Brian Koffmanhttp://www.blogger.com/profile/13250684684103918493noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2741672436160438708.post-57438553255813961292010-04-05T10:00:08.744-07:002010-04-05T10:00:08.744-07:00I keep expecting these losses to diminish as we le...I keep expecting these losses to diminish as we learn a little more about CLL, but there's more we don't know about treating the disease than we know. Transplants should never be required. <br /><br />I was 48 when I was diagnosed. I know the pain and the surprise at getting cancer at a (relatively) young age. <br /><br />I am treated 500 miles away, and I have to fly to get there. The local docs know very little. Medicine is an art, and I find that local docs aren't up on the latest research. My FCR was probably cut short because the doc stopped it without real justification. I'm worse off now than if I had gone to an expert.<br /><br />However, you do what you must do. <br /><br />(One of the local hematologists I've seen has moved to another job. I met with his replacement, and he told me that he was looking forward to learning about CLL from me (!!!!). Obviously, you don't want to be treated by someone such as that. <br /><br />I am sorry to learn of this terrible loss. I can only say that having a family might have helped ease his pain at the end. People remain to keep his memory alive.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-3592319410229936232010-04-03T03:47:46.536-07:002010-04-03T03:47:46.536-07:00Brian
You are blessed to have known each other. ...Brian<br /><br /><br />You are blessed to have known each other. <br />If only it could have been for longer.<br /><br />May his memory be for a blessing<br /><br />SusanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-5075049578308537312010-04-02T20:38:34.309-07:002010-04-02T20:38:34.309-07:00Brian,
So many times I have wanted to express to ...Brian,<br /><br />So many times I have wanted to express to you how much you are appreciated. Tonight reading your words about your (our) friend, Ron, did it. So meaningfully and beautifully expressed to our CLL community. Thank you.<br /><br />Alicia Rodondi, San Jose, CA, dx 12/04, missed CBC report 03/01, stage 0, CD38 <1%, now 70, platelets may be where I will have a problem.Anonymoushttps://www.blogger.com/profile/14757345783040493474noreply@blogger.com