tag:blogger.com,1999:blog-2741672436160438708.post2541924563645473151..comments2024-03-26T12:50:32.070-07:00Comments on Learning from and about cancer (chronic lymphocytic leukemia or CLL) by Dr. Brian Koffman: Why can't we all get along?Brian Koffmanhttp://www.blogger.com/profile/13250684684103918493noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2741672436160438708.post-86336465168952968592010-02-05T20:09:14.900-08:002010-02-05T20:09:14.900-08:00For gosh sakes, man! Dr. Kipps is one of the top ...For gosh sakes, man! Dr. Kipps is one of the top CLL experts in the world! He has forgotten more about CLL than you or I (combined) will every know!<br /><br />He is getting excellent results using HDMP+R, R&R, and other treatments. <br /><br />I've been following your blog since you started it. We share the 'wonderful' 11q del; I developed mine over time.<br /><br />I questioned your decision to go for the 'big guns' right off the bat, but never said anything to you, since none of us needs to be questioned about treatment decisions already made.<br /><br />I personally would not get a transplant unless I had no other option. Even then, I might not. I've heard too many horror stories.<br /><br />You should consider that 'heavy' treatment that mkali seems to prefer can further damage your immune system, increase the risk of secondary malignancies, and put you into a place from which you will have a hard time recovering.<br /><br />It is my opinion (obviously) that you should listen to Dr. Kipps. No disrespect to your doctor, but how many papers has he published on CLL? <br /><br />As far as mkali stating that Dr. Kipps is 'big on palliative care', he or she is full of it. What makes him/her an expert?<br /><br />Dr. Kipps is a conservative treater, and not like the folks at MD Anderson, who will give you FCR, regardless of the fact that it will give 10% of the people MDS and another 10% of the people Richter's transformation. They never mention that. <br /><br />I think Dr. Kipps wants to keep you alive until better treatments come down the pike. <br /><br />I'd listen to Kipps. <br /><br />But, it's up to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-86746814894939110942010-02-03T19:06:24.477-08:002010-02-03T19:06:24.477-08:00Hoping that your BMB will show low numbers and you...Hoping that your BMB will show low numbers and you can take a simple path for a change while, as you say, the gurus figure out how to fix all of us with simpler solutions!pkennhttps://www.blogger.com/profile/13809778695114100756noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-2899506622728840762010-02-03T14:23:22.252-08:002010-02-03T14:23:22.252-08:005% monoclonal B cell..............HUM.....not sure...5% monoclonal B cell..............HUM.....not sure what it is, but I'mwith you on this one....lets pray for 5%.....<br /><br />Maybe they will get lost on the way to understanding my maps!<br /><br />have a great week.........<br /><br />JJudy Clerihttps://www.blogger.com/profile/06848970913060813228noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-1263841695244444972010-02-02T18:37:06.453-08:002010-02-02T18:37:06.453-08:00Hi Brian,
Doctors like Kipps and Hamblin are big ...Hi Brian,<br /><br />Doctors like Kipps and Hamblin are big advocates of palliative care (like chloromobucil and vaccine therapy), it is suitable for patients > 70 years so these treatments could buy them 6 to 7 years but for younger patients who have 20 to 25 years can not use diverse toxic chemotherapies and after 6 to 7 years they will not be in a position to sustain the rigours of transplant with many comorbidities plus they will not get CR with any therapy resulting in transplant relapse in future.<br /><br />thanks<br />mkaliAnonymousnoreply@blogger.com