tag:blogger.com,1999:blog-2741672436160438708.post797834821793201996..comments2024-03-26T12:50:32.070-07:00Comments on Learning from and about cancer (chronic lymphocytic leukemia or CLL) by Dr. Brian Koffman: A response to an important comment: CLL has pretty much ruined my lifeBrian Koffmanhttp://www.blogger.com/profile/13250684684103918493noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2741672436160438708.post-56168065187923139342016-08-11T04:42:28.777-07:002016-08-11T04:42:28.777-07:00The physical pain of my CLL comes and goes, and I ...The physical pain of my CLL comes and goes, and I am able to in-between live a more or less normal life (which I am very thankful for). However, I can't make too many plans, except for updating my will and making sure my family is well-cared for after I'm gone. Yet that is the reality for many of us who faced cancer when we were relatively (or actually) young.<br /><br /> <a href="http://shireslaw.com/types-of-claims/accident-at-work/" rel="nofollow">Work Injury Compensation</a><br />Anonymoushttps://www.blogger.com/profile/07738055572349628866noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-22061380655358460822011-01-16T00:22:17.624-08:002011-01-16T00:22:17.624-08:00I'm a 46yo female and I was diagnosed with CLL...I'm a 46yo female and I was diagnosed with CLL almost three years ago. I had CLL for about seven years @ diagnosis, and I have maybe three years left... I recently learned that it's unmutated with the 17p deletion (which is what gives my CLL a shelf-life of less than ten years.)<br /><br />Yes, it certainly does stink and I can relate wholeheartedly with the feeling of not being able to make plans and having to make tough choices and feeling like I'm being cheated. On the other hand, this experience has also opened my eyes to the life that is right here, right now, right in front of me...and I'm not giving up! I want to live to the fullest whatever time I have left, and I want to do whatever I can to at least feel healthy; mentally and physically.<br /><br />I was online tonight looking for some likeness, someone to relate to and someone for whom I could feel the compassion and understanding that I so often find missing in my own experience. I just wanted to read a blog that said something I could relate to, and a blog that perhaps said something that I seem to not be able to say for myself. I also longed to find inspiration from someone with a similarly difficult CLL case. I found all of this with both of you, and so I just wanted to say thanks for sharing and thanks for being out here!<br /><br />I wish you both the very best! Thanks again!<br /><br />~Good NightUnknownhttps://www.blogger.com/profile/15678575836370379994noreply@blogger.comtag:blogger.com,1999:blog-2741672436160438708.post-36339010278703345272010-12-20T10:38:45.314-08:002010-12-20T10:38:45.314-08:00As the anonymous author of that complaint, thank y...As the anonymous author of that complaint, thank you for your response.<br /><br />As I 'celebrated' my 12 year anniversary, a woman at my Lutheran church congratulated me. I suppose that's nice (of course), but I wanted to tell her that CLL totally altered my life and made it very much less enjoyable.<br /><br />As I lay in bed the night after treatment with flavopiridol, very much in pain and misery in my gut, I wondered how much of that I would take if it never ended. Not much.<br /><br />The physical pain of my CLL comes and goes, and I am able to in-between live a more or less normal life (which I am very thankful for). However, I can't make too many plans, except for updating my will and making sure my family is well-cared for after I'm gone. Yet that is the reality for many of us who faced cancer when we were relatively (or actually) young.<br /><br />Reading an article about how we all are bathed in electromagnetic smog (as they call it) and the health effects of such, I think back to the years I worked in a building right under one of those massive cell towers. <br /><br />Did that help cause my CLL? I don't know, but I do know that many in our office where struck by cancer. Brain, breast, leukemia, bone, liver, and lymphoma to mention a few. We probably had about 20 cases of cancer in 300 people, all youngish, in the years I've worked there. I don't remember anyone getting cancer when we worked downtown. Who knows.Barry B.https://www.blogger.com/profile/16562498733714000836noreply@blogger.com