There is some very good news is my ANC (neutrophil count) has climbed to over 200 from a low of 70, which just might mean I am starting to engraft. 500 is the magic number.
I will try to write more later in the day. Sleep now.
What started as a personal journey of a doctor turned patient morphed into a way to share what’s universal in dealing with cancer, in my case a nasty leukemia (CLL), a failed transplant and a successful clinical trial. The telling of my journey has become a journey to teach about CLL, related blood issues and all cancers. Please visit our new website http://cllsociety.org for the latest news and information. Smart patients get smart care™. If you want to reach me, email bkoffmanMD@gmail.com
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Sunday, July 13, 2008
Day 12+
Very tired and sore, and not very literate this morning. More sores, now in my increasingly hairless scalp. Between ice packs for my sore PICC line and hot packs for my sore nose, I am quite the study in contrasts. Little sleep. I have no doubt that this is a minor detour on the road to a cure. I am being treated for infected hair follicles (folliculitis) and disseminated herpes (my diagnosis with the help of a doctor friend) I know, I am not supposed to be playing doctor but this is critical stuff and playing doctor is what I do. Infections are the leading cause of morbidity and mortality in the immediate post transplant period. I have no intentions to be morbid and while I am mortal, I don't plan to exercise that option for another 40 years or so.
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