Dr. Forman also says I am over reading the significance of my dry mouth. He does not think it is mild GVH. Wrong timing. At least I am over reading my symptoms in a positive direction for a change.
Next Monday I get the BIG tests in addition to the standard happily boring lab. They will look for CLL in my blood and measure my degree of engraftment again. I should have the results next Thursday. This is the critical stuff that shows how much of my blood lines are old me and how much are from my donor. I am confident of and slightly less neurotic than last time about the expected good news. A positive trend is the heart of the matter. It's both the journey and the destination.
Soon I will be down to clinic visits once a week. Because my engraftment is so darn slow, my GVH may pop up later, so I may need to return again to more frequent monitoring. Next week's test will be a factor in those decisions.
Been learning from Dr Wendy Harpham's book "Happiness in a Storm". I highly recommend it. Very practical helpful counsel on how to be a Healthy Survivor (not the TV type survivor, but the real life hero of a catastrophic illness).
Watch Hotel Rwanda from Netflix. A very fine movie. A tough inspirational movie against a hellish backdrop. It asks what really counts in life? It asks the viewers what they would do with their life or their family's life on the line?
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ReplyDeleteDr. Koffman,
ReplyDeleteOur Family has been keeping track of your journey. When Lisa was down the first week in June, she and Brian both called the office to give blood.
We all agreed that a good movie for you would be a foreign film called "Children of Heaven"(subtitled) It is a story with struggles, hope and love....
Keep on keeping on,
Allen, Susan, Brian,
& Lisa too!
When you play the game of SCT/BMT boring, dull and lackluster can be a good thing. In your case I think it is. You are doing great and I wish mine goes as well as yours. Lets see some great results next week.
ReplyDeleteYour CLL friend
Robert.