On a whim, after a vegan meal, went to the famous Cactus Cafe in the Texas Union at the U of T in Austin, and was blown away by Junior Brown
I love Austin.
Last time I was here I was lucky enough to Willie Nelson.
This place is a musician's paradise
Platelets were higher on Wednesday than 2 weeks earlier. Still taking the immunosuppressive, blood pressure raising, son of a mold, cyclosporin, but my kidney function remains good and it is suppressing my wanton immune system's wish to wipe out my platelets.
Still getting IVIG and blood work, but that means I am only in the infusion center 2 x month instead of weekly as I have stopped the Rituximab.
I am in a deep remission, deep enough to visit Austin and hear some great music
Just how deep will be determined by a bone marrow biopsy in a a month or so.
I am loving it.
Hi Brian
ReplyDeleteGlad all is going well at the moment. Lovely to read your updates although for some reason I am not getting any notifications anymore. This has been the case for the last month.
I am off for an assessment for yet another news drug this week. Hopefully I will get the drug quickly and it will work!
Love from Sunny London
Susan