Check out his wide ranging website full of real dialogue with doctors and patients at http://www.patientpower.info/ to learn more. I am sure you will.
What started as a personal journey of a doctor turned patient morphed into a way to share what’s universal in dealing with cancer, in my case a nasty leukemia (CLL), a failed transplant and a successful clinical trial. The telling of my journey has become a journey to teach about CLL, related blood issues and all cancers. Please visit our new website http://cllsociety.org for the latest news and information. Smart patients get smart care™. If you want to reach me, email bkoffmanMD@gmail.com
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Tuesday, January 17, 2012
Andrew Schorr interviewing me at ASH 2011
My friend and fellow CLLer, the Seattle based journalist Andrew Schorr does a great service to CLL patients in particular and many others with chronic illnesses in general with his helpful interviews with the major researchers, often at the big medical society meeting. Here he takes a break from the "usual suspects" and interviewed me at ASH. (The American Society of Hematology) , 2011.
First time I have seen you on video. Enjoyed it. I like what you had to say about the CLL game that none of us really wanted to play yet many of us try to play wisely since we aren't given a choice. We can't just take our CLL game ball and go home. No, we have to play with a set of rules that haven't been easy to understand. But it seems as the rules are becoming more and more clear which gives us a better advantage in playing the CLL game. And the goal is to keep playing. A BMT is a desperate attempt to take the CLL ball to the house and declare "game over". But this has the risk of being disqualified in life for un-sportsman like conduct. So much better to understand the rules and keep playing. If there ever becomes a way to take the ball home and never come back without being disqualified then we will all gladly go to the house with the game ball. We are all anxious to see the outcome of this PCI32765Hopefully this will be a game changer and put the rules of the game in our favor.
ReplyDeleteTom B
Great interview, Brian! Good to hear and see you talking. Now I'll be able to hear your voice in your blog posts! Take care and I also want to add my own "GOOD HEALTH to you!" : )
ReplyDeleteGOOD HEALTH BRIAN ALWAYS.
ReplyDeleteBUNNY