This important information is from the CLL ACOR list.
I am one lucky dude to live in California, for many reasons, including clinical trial coverage.
A quick look at the link below suggests that coverage is pretty good in most states, and even better with private carriers compared to government plans.
Thank you Liz for sharing this:
Subject: Will Your Insurance Cover a
Whether an insurance company pays for
routine care costs in a clinical trial varies by state law. In some states,
only clinical trials for children are covered. In others, only costs associated
with phase III trials are covered. There are many variations. Under the
Affordable Care Act (Obamacare), all insurance carriers must pay for routine
care in clinical trials in all states starting January 1, 2014.
Many drug manufacturers also offer
financial assistance to make investigational (not yet FDA approved) drugs
available to patients in need for off-label use by certain doctors, usually
principal investigators. As Karni writes below if you have concerns about
costs, ask the research coordinators on the trial. They often have their own
strategies and billing tactics to help a patient get coverage and afford a
Director, Hope for Lymphoma
East Hampton, NY 11937
Labels: Clinical trials, insurance authorization