Today
in the 2016 Conference Coverage section of the CLL Society website, we’ve
posted an interview with Dr. Michael Hallek about the unmet needs in CLL as
well as his approach to addressing them through research. You can view my
interview here. http://cllsociety.org/2016/10/eha-2016-hallek-unmet-needs-cll/
If you
have not yet participated in our Reader
Poll to give us feedback about how we’re doing and what topics you would
like to see covered in the future, please
take 2 minutes and do so if you have time. We appreciate the input we’ve
received so far and would love to receive more. Thank you. You can access it
here. https://q32016ask.questionpro.com/
Patient & Caregiver Support
Meetings
Monday, October 17th
at 7:00 PM at the City of Hope in Duarte, CA. See here for more information. http://cllsociety.org/event/city-hope-cll-support-group/2016-10-17/ I will be speaking there.
NEW! Tuesday, October 18th
at 6:30 PM at the Levine Cancer Institute in Charlotte, NC – the first meeting of a new CLL Patient & Caregiver
Support and Education Group. Patients and family caregivers are welcome. Find
out more about dates and registration here. http://cllsociety.org/docs/CLL%20Patient%20Caregiver%20Support%20Group%20Levine%20Cancer%20Center.pdf
NEW! Tuesday, November 1st
at 6:30 PM at the Moffitt McKinley Outpatient Center in Tampa, FL – the first meeting of a new CLL Patient & Caregiver
Support and Education Group. Patients and family caregivers are welcome. You
can find more information here! http://cllsociety.org/docs/Tampa%20Patient%20Support%20Group%20Flyer.pdf
If
you’re aware of other CLL Patient Support Group meetings, let us know and we’ll
post them. Thanks!
Patient Education Meetings
From
time to time, we will make you aware of in-person Patient Education meetings
coming up for those of us affected by CLL and lymphoma, specifically:
·
Wednesday, November 16th at 6 PM
at the Hilton Minneapolis/St. Paul Airport – Mall of America in Bloomington, MN:
The Lymphoma
Research Foundation will be hosting
Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as
part of their Ask the Doctor series. Dr.
Timothy Call, from the Mayo Clinic is the featured speaker. Dinner will be served and there is no charge to attend. You can find
out more information and register here. http://www.lymphoma.org/site/pp.asp?c=bkLTKaOQLmK8E&b=9301553
Heads Up! The CLL Society has become
aware of a series of unbranded (no specific drug discussion) patient education
meetings coming up in October and November. CLL patients will share their
personal stories, and local CLL experts will be providing a talk on the basics
of CLL. A complimentary meal will be provided and parking is free. You are
welcome to bring a guest.
One
member of the CLL Society will be at each meeting to show a brief video and
give a talk about the impact support and education groups have had on their CLL
journey. We will provide practical tips and support for setting up a local CLL
group and will stay afterwards to meet with attendees who may be interested in
participating in a support group in those areas. We look forward to meeting you
there. The next 4 confirmed meetings are:
·
Tuesday, October 25th in Golden, CO. More details in
the flyer. Access it here. http://cllsociety.org/docs/BCO_LPOP_CLL_EventFlyer_DenverCO_082216.pdf
·
Saturday, October 29th
in San
Francisco, CA. More details in the flyer. Access it here. http://cllsociety.org/docs/EventFlyer_SanFranCA.pdf I will be at this one
·
Thursday, November 10th
in Metairie, LA.
More details in the flyer. Access it here. http://cllsociety.org/docs/BCO_LPOP_CLL_EventFlyer_NewOrleans_082416.pdf
·
Wednesday, November 16th in Austin, TX. More details in
the flyer. Access it here. http://cllsociety.org/docs/BCO_LPOP_CLL_EventFlyer_AustinTX_082416.pdf
In the
meantime….
Stay strong.
We are all in this together.
Brian Koffman, MD
10/10/16
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