Wednesday, July 28, 2010

More Music and a great Montreal bagel

A last minute on an impulse hour long drive up the coast to Hermosa Beach, a few doors from the famous Lighthouse, 60's mecca for west coast jazz, Patty and I were transported away by catching our friend, Luther Hughes and the Coltrane, that is the Cannonball/Coltrane Project. Stepping in to hear the jazz go down. Patty had the scallops at Sangria, I had the bread (nothing vegan on the menu), but the music was the sound of heaven on earth.

On the way home, we rushed into the Montreal style Redondo Beach Cafe a few mile down the road just as it was to close to order a St Viateur bagel- no butter or creme cheese of course- but a taste of heaven nonetheless.

Small pleasures. Squeezing joy from every moment.

Now back to work.

Disturbing article out of Saudi Arabia suggesting very shortened responses of ITP to rituximab in those like me with splenectomy.

I just saw the abstract when I got home, so I have ordered the article, but I need to start making plans. Plan C. I need to catch up on my CLL reading.

Spoke with my donor today. He was enjoying a beach day with his family on the Mediterranean in Israel. We chatted. He is a very good man. I am very lucky, as I may need his help again. But we didn't talk much about that. We talked about the beach and travel.

I want to live in denial. I don't want to face decisions again. I am tired of being prepared. Sick of always thinking ahead.

But that is nowhere, and I have too many places to be. And too much hunger for life. I have too many good friends and too much left to do.

So I will dig in again and come up with a contingent plan. But not tonight.

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