Monday, July 21, 2008

"How can I be sure in a world that's constantly changin?" The Young Rascal

Below is part of the email I received from Dr Forman. What a mensch!  It explains my confusion about my engraftment status, specifically whether my neutrophils (CD15 is a marker for neutrophils) are from my donor or my old marrow. If I am not careful, this kind of stuff can drive me crazy. Pretty good news in all and I didn't have to wait too long. I will sleep better tonight. In fact  i will sleep great in my own bed.

There is a take away message from all this.  Get copies of your lab. Check the accuracy of your prescriptions. The PA forget two of my anti rejection drugs. It could have been a disaster if I hadn't checked. As it was it only added hours of waiting for her to correct  the mistake. But these are minor bumps in the road. I am home  and in the process of healing.

I checked in the lab and there is a discrepancy in the CD15 reports .The report I have shows 100% donor on the neutrophil, but the report that you got says 100% recipient. I will have  to track this down tomorrow.  The most important number however is the T cells and that is showing early engraftment as it is these cells that actually mediate engraftment of the stem cells that lead to neutrophils and monocytes, and we will be repeating all of this on day +30 anyway. Nevertheless, I will call the lab as they may have to rerun the sample if there is any DNA left.


Blogger J.R. said...

Sweet dreams in your own bed tonight. What an unexpected blessing that you would be home so soon. You are extraordinary!

July 21, 2008 at 9:36 PM  
Blogger Unknown said...

My only advice to a Dr. about medical procedures and protocols is psychological in nature. Keep an even temperament during the highs and lows so you do not set your self up for disappointments. Be a good patient and allow the mistakes to go but make sure you get them corrected swiftly. And no matter what, always appreciate the staff. This is the doctrine that I live by with my doctor and nursing staff and It keeps me psychologically sound and on good terms with all of them.

You are your greatest patient advocate (I have my wife) and as long as you check and recheck there procedures and protocols you will be triumphed in the end.

Your CLL Friend

Robert and Family

July 22, 2008 at 12:38 AM  
Blogger Howard said...

Homeward bound, Home where my love awaits me, Hope you slept well. Knowing you will be well, From Oregon, Many blessings, Howard

July 22, 2008 at 8:50 AM  

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