Monday, September 15, 2008

"It's still the same old story A fight for love and glory A case of do or die. " Herman Hupfeld

Play it again, Sam

My bone marrow reflected my peripheral blood: 29% donor at day 65 with 56% donor T cells. My blood at day 55 was 28% donor and 64% T cells.

I am scheduled for a CT scan on Friday and repeat chimerism studies in 2 weeks, with the results in 3. More clues, but the answer may only come when we send a trend, over time. More waiting, I am afraid.

For now, there is no change in course. Dr Forman says he will let the disease determine the next move.  Seems a touch reactive to me, but why make a risky move when we are in a bit of a fog, and the ship is doing just fine, thank you, as time goes by.

4 Comments:

Blogger Wendy S. Harpham, MD said...

Dear Brian,
Over the 17 1/2 yrs of my survivorship, I've spent a lot of months in what physicians call "Wait and see," what many patients call, "Wait and Worry," and what I called, "Live and Wait."

I remember when I realized that whether I spent my time worrying or living was up to me. It wasn't always easy to stop worrying. But once I decided in my stubborn way that I did not want worry to steal otherwise good time from me, I found ways to calm the worry and distract myself from what worry remained.

Renaming the "Wait-and-See" period "Live and wait" was a start. And you'll notice I put the "live" before the "wait."

With hope this helps, Wendy

September 16, 2008 at 7:21 AM  
Blogger Barry B. said...

Would another infusion from the donor help the engraftment?

September 16, 2008 at 8:31 AM  
Blogger Susan C said...

Hi Brian,
Off topic,but check out this Media Bistro online course on writing the non-fiction book proposal. I've taken in person Media Bistro courses and can highly recommend them. Class starts Wednesday.
http://www.mediabistro.com/courses/cache/crs3897.asp?c=mbencrsperse

September 16, 2008 at 11:24 AM  
Blogger rpassananti said...

I know it’s hard to sit back and be reactive instead of proactive. Heck, you volunteered for the BMT/SCT which is a proactive approach. You are doing great.

September 17, 2008 at 8:03 AM  

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