"It's still the same old story A fight for love and glory A case of do or die. " Herman Hupfeld
Play it again, Sam
My bone marrow reflected my peripheral blood: 29% donor at day 65 with 56% donor T cells. My blood at day 55 was 28% donor and 64% T cells.
I am scheduled for a CT scan on Friday and repeat chimerism studies in 2 weeks, with the results in 3. More clues, but the answer may only come when we send a trend, over time. More waiting, I am afraid.
For now, there is no change in course. Dr Forman says he will let the disease determine the next move. Seems a touch reactive to me, but why make a risky move when we are in a bit of a fog, and the ship is doing just fine, thank you, as time goes by.
posted by Brian Koffman at
4:23 PM
4 Comments:
Dear Brian,
Over the 17 1/2 yrs of my survivorship, I've spent a lot of months in what physicians call "Wait and see," what many patients call, "Wait and Worry," and what I called, "Live and Wait."
I remember when I realized that whether I spent my time worrying or living was up to me. It wasn't always easy to stop worrying. But once I decided in my stubborn way that I did not want worry to steal otherwise good time from me, I found ways to calm the worry and distract myself from what worry remained.
Renaming the "Wait-and-See" period "Live and wait" was a start. And you'll notice I put the "live" before the "wait."
With hope this helps, Wendy
Would another infusion from the donor help the engraftment?
Hi Brian,
Off topic,but check out this Media Bistro online course on writing the non-fiction book proposal. I've taken in person Media Bistro courses and can highly recommend them. Class starts Wednesday.
http://www.mediabistro.com/courses/cache/crs3897.asp?c=mbencrsperse
I know it’s hard to sit back and be reactive instead of proactive. Heck, you volunteered for the BMT/SCT which is a proactive approach. You are doing great.
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