Sunday, January 18, 2015

No more deaths from CLL (chronic lymphocytic leukemia)?

Will there soon be a day that there will be no more deaths from CLL (chronic lymphocytic leukemia)?

That may not be possible.


The better question is whether we soon can give everyone one of us with CLL a very very long and high quality life with the diagnosis.


With support and education and research, that is absolutely possible.


Online and local support groups, educational blogs (like mine and others) and CLL focused websites help inform the best possible decisions.
Today, a significant number of us CLL patients, if we choose wisely and get a lucky break or two, can have a very long run with little price to pay. And that number is growing.
But still too many of us get lost on the road or get banged up on the trip  or worse, blindsided by a fatal accident despite reading all the road signs and making the best possible decisions.
I, like everyone in the CLL forums, am dedicated to educating and supporting my fellow CLLers, but that is only one step. We need more and better treatment options. We also need to reach more fellow patients and providers alike about the best options already available, with therapy decisions being made based on the best evidence and the preference voiced by us patients.
Our work is daunting, but I believe we are getting close.
That is what drives the efforts of this blog, the nonprofit CLL Society Inc., and many many others.
Stay strong
We are all in this together.

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1 Comments:

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March 3, 2015 at 8:05 PM  

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