Off to iwCLL 2015 to learn, teach, share, support and report on CLL ( chronic lymphocytic leukemia)
Friends
I am off to Sydney, Australia tomorrow with our nonprofit CLL Society where I will be your unpaid in person reporter from the meeting.
I am also speaking at iwCLL 2015 on a panel with Dr. Michael Keating, Dr. Andrew Roberts, and others on the Funding Equation where we will discuss ways to improve access to our meds despite their expense. I am talking about the Canadian and American patient experience.
And despite greatly discouraging logistical difficulties, we have also organized a patient Q+A session in conjunction with the wonderful team at Lymphoma Australia in Sydney for patients that are coming from as far away as New Zealand. We should have video from the doctors attending: Drs. Wierda, Wiestner, and Trotman.
It’s a very very long trip, and much work, but I am excited about this amazing opportunity to go and to share what I learn firsthand with the gang here.
Let me know if you have any burning questions for the gathered experts.
Stay strong.
We are all in this together.
Brian
http://cllsociety.org
http://bkoffman.blogspot.com
I am off to Sydney, Australia tomorrow with our nonprofit CLL Society where I will be your unpaid in person reporter from the meeting.
I am also speaking at iwCLL 2015 on a panel with Dr. Michael Keating, Dr. Andrew Roberts, and others on the Funding Equation where we will discuss ways to improve access to our meds despite their expense. I am talking about the Canadian and American patient experience.
And despite greatly discouraging logistical difficulties, we have also organized a patient Q+A session in conjunction with the wonderful team at Lymphoma Australia in Sydney for patients that are coming from as far away as New Zealand. We should have video from the doctors attending: Drs. Wierda, Wiestner, and Trotman.
It’s a very very long trip, and much work, but I am excited about this amazing opportunity to go and to share what I learn firsthand with the gang here.
Let me know if you have any burning questions for the gathered experts.
Stay strong.
We are all in this together.
Brian
http://cllsociety.org
http://bkoffman.blogspot.com
Labels: Chronic lymphocytic leukemia, CLL, iwCLL 2015, reporting
posted by Brian Koffman at
2:20 AM
1 Comments:
Thank you Brian for your nonstop dedication to the CLL community. Wishing you safe travels. My only question would be, since we have a well stocked arsenal of medications and more on the way, would it be unreasonable to hope for a cure for those of us in our 40s-50s and if not a cure at least a normal life expectancy. As the mom of two teens, I am hoping I get to see my kids grow into adulthood and possibly even live of my dream of being a doting grandmother:).
Post a Comment
Subscribe to Post Comments [Atom]
<< Home