This week in the Clinical Trials section of the CLL Society website, we have posted an article authored by Adam Irgon. He shares the story of his fast moving CLL and his struggles to control it especially in the context of two different clinical trials. His gritty tale of courage spares no details and is not for the faint of heart, though it does finish on an upbeat note. You can read about his ongoing journey here.
This week will be another busy one. I’m heading to the CLL Research Consortium meeting on Wednesday and then taking a redeye flight on Friday heading to Atlanta for a CLL educational meeting on Saturday, February 27th. It starts at 9:30 AM at the Sheraton Suites Galleria-Atlanta [http://www.cllsociety.org/docs/atlanta.pdf ]. CLL patients will be sharing their personal stories, and a local CLL expert will be providing a talk on the basics of CLL. You can call 844-482-6815 to register. A complimentary meal and parking will be provided and you are welcome to bring a guest. I will be at the meeting with an exhibit table and will stay afterwards to meet with attendees to discuss the resources available from the CLL Society. I look forward to meeting you there.
Wednesday, February 24th: For those of you in the Miami area, there is a CLL patient meeting hosted by the Florida Society of Clinical Oncology (FLASCO) being held at the Miami Marriott Dadeland at 5:00 PM. A complimentary buffet dinner will be provided. I’m not able to attend this meeting, but you’ll have the opportunity to ask questions of the expert speakers. [https://www.flasco.org/events/living-with-cll-miami/] The one I attended in Tampa was super.
March 21st at 7 PM: First Patient Support and Education Meeting at City of Hope: For those of you in the Los Angeles area, a new patient support and education group is forming. For more information, view the flyer. This is modeled on the group I have been attending in Orange County for more than 8 years, and I can not overstate its value.
THIS IS THE LAST WEEK: Join lymphoma patients around the world to help others understand the lymphoma patient experience and especially the subtype of CLL! Complete the 2016 Global Patient Survey today!
In the meantime….
We are all in this together
Volunteer Medical Director of the CLL Society
Labels: Chronic lymphocytic leukemia, City of Hope, Clinical Trial, CLL, FLASCO, http://cllsociety.org