The happy couple standing right on the equator at the most elegant Mt. Kenya Safari Club
(Just sharing it wasn't all roughing it on our trip to Kenya. We stayed for one night where the movies stars stayed in the 30s)
I’m sort of back in the swing of things and have partially caught up on sleep finally.
We are
pleased to announce that a new CLL
Patient & Caregiver Support and Education Group will be starting in
partnership with the Levine Cancer Institute – Morehead in Charlotte, North Carolina. The first meeting will take place on Tuesday, October 18th at 6:30 PM.
Patients and family caregivers are welcome. Find out more about dates and
registration HERE.
From
time to time, we will make you aware of in-person meetings coming up for those
of us affected by CLL, specifically:
·
Monday, September 19th
at 10 AM at at The Grand Central Hotel in Glasgow, Scotland: The CLL Support Association
(CLLSA) is hosting a 2016 Glasgow Members Conference. Dr. Alison McCaig a consultant in the haematology department of
the Royal Alexandra Hospital will be the featured speaker. Lunch and
refreshments will be served and there is no charge to attend for members. You
can find out more information and register here. http://www.cllsupport.org.uk/civicrm/event/info?reset=1&id=33
·
Wednesday, September 21st at 6
PM at the New York Marriott East Side in New York City: The Lymphoma Research Foundation
will be hosting Updates on Chronic
Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the
Doctor series. Rick Furman from New
York Presbyterian – Weill Cornell Medical (also part of the CLL Society Medical
Advisory Board) is the featured speaker.
Dinner will be served and there is no charge to attend. You can find out
more information and register here. http://www.lymphoma.org/site/pp.asp?c=bkLTKaOQLmK8E&b=9419387
The CLL Society has become
aware of a series of unbranded patient meetings coming up in September and
October (with a few more to come in November and December). CLL patients will
share their personal stories, and local CLL experts will be providing a talk on
the basics of CLL. A complimentary meal will be provided and parking is free.
You are welcome to bring a guest.
One
member of the CLL Society will be at each meeting to show a brief video and
give a talk about the impact support groups have had on their CLL journey. We
will also have an exhibit table and will stay afterwards to meet with attendees
who may be interested in participating in a support group in those areas. We
look forward to meeting you there. The first 3 confirmed meetings are:
As you can see, we've been busy.
Labels: Chronic lymphocytic leukemia, CLL, Dr. Jeff Jones, ibrutinib, Idelalisib, venetoclax
2 Comments:
Those of us who are fortunate to be surviving due to ibrutinib should wonder, what happens after ibrutinib? The survival rate appears to be dismal. We hope the day never comes but I am hopeful that we will have good treatment options when it does.
Great picture Dr. K!
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