been incredibly busy since I returned stateside at LAX from Nairobi. Between the jet lag and catching up with work and
upcoming activities for the CLL Society, I’m in desperate need of sleep!
But I have some very good news. My lab tests done the morning after I landed that had shown an ominous left shift signaling a significant infection or the start of CML or worse has disappeared as quickly as it came. My ALC is back around its sleepy normal level of about 2 and I have no immature cells that should be in my marrow hanging out in by peripheral blood.
Also on the money side, the errors in insurance billing are being corrected, I am finally being paid and my long standing problems with my Canadian pension may be worked out.
Once again, under reacting and watching the trend has been the motto to live by. The middle way.
Terry Evans, long-term CLL patient, and I traveled to New Jersey to tape an
interview about his CLL journey starting out as a naïve patient and the
experiences that led him to understand the importance of having a CLL expert on
his team, and the many factors to consider if you are considering a clinical
trial. We worked on this project in partnership with Haymarket Education. You
can watch the video here: http://cllsociety.org/2016/08/discuss-cll-patient-journey/
TRANSLATION NOW AVAILABLE: Just an FYI, in the upper left
hand corner of the CLL Society website is a “Translate” button. You
can now select your preferred language to learn about CLL.
time to time, we will make you aware of in-person meetings coming up for those
of us affected by CLL. This one features Dr. Furman, so attend if you can
September 21st at 6 PM at the New
York Marriott East Side in New York City:
The Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia /
Small Lymphocytic Lymphoma
as part of their Ask the Doctor series.
Rick Furman from New York Presbyterian
– Weill Cornell Medical (also part of the CLL Society Medical Advisory Board) is
the featured speaker.
Dinner will be
served and there is no charge to attend. You can find out more information and
register here. http://www.lymphoma.org/site/pp.asp?c=bkLTKaOQLmK8E&b=9419387
Heads Up! The CLL Society has become
aware of a series of unbranded patient meetings coming up in September and
October (with a few more to come in November and December). CLL patients will
share their personal stories, and local CLL experts will be providing a talk on
the basics of CLL. A complimentary meal will be provided and parking is free.
You are welcome to bring a guest.
member of the CLL Society will be at most meetings including these two listed below to show a brief video and
give a talk about the impact support groups have had on their CLL journey. We
will also have an exhibit table and will stay afterwards to meet with attendees
who may be interested in participating in a support group in those areas. We
look forward to meeting you there. The first confirmed meetings are:
We are all in this together.
Labels: Chronic lymphocytic leukemia, CLL, good news, Terry Evans