Starting CAR-T Therapy For my CLL (chronic lymphocytic leukemia)

Friends and CLL Society supporters:

This isn't easy.

After consulting with my wife, my family, my closest friends and key supporters of the CLL Society, I decided it was best to again share details of my personal battle with CLL in a very public way.

After a wonderful run of 69 months on Ibrutinib, my CLL is now officially relapsing. I am very grateful to Dr. Byrd and the team at Ohio State for their great care over the past 6 years.

But it is time to move on.

Very soon, I will be undergoing innovative CAR-T therapy as part of a phase I/II clinical trial.

I am confident that this CAR-T trial offers me the very best chance for a long and deep remission.

I will be frequently blogging and sharing all details about my CAR-T experience here. My first more detailed post that share more about my decision is already up. Please take a look, stay in touch and share your thoughts. More details will be coming soon.

Independent of and prior to this big decision, we have produced a fun comic book about CAR-T. It's up on the website too.

We will be bringing much more information and support about CART-T over the next few months on a new CAR-T section of the website https://cllsociety.org/car-t-and-other-cellular-therapies/.

I hope others will benefit from following my CAR-T story as I begin this new adventure.

Your thoughts, prayers and support are greatly appreciated.

Stay strong.

We are all in this together.

Brian Koffman

http://cllsociety.org