Visit to Pharmacyclics to Say Thanks for their Work on Ibrutinib

I was delighted to have the unique opportunity, as a patient in one of their trials, to speak to the staff at Pharmacyclics, the people who make ibrutinib (PCI-32765), to express my thanks and to put a face and a personal story to the statistical plots.

As all us CLLers know, every point on a Kaplan Meyer curve is (or sadly was) a living, breathing soul, a mom or dad, a husband or wife, a sister or brother, a friend or co-worker with a story to tell.

I came to tell mine and to say thank you from me.

And to say thank you from my whole family.

This picture was from my daughter Heather's wedding last month in Chicago, by the lake. I am at the far left.

For me it was very emotional. I have been lucky enough to speak in front of thousands of healthcare providers and patients on CLL but now I was talking to the people who make the medicine that, in a significant way, was allowing my very act of speaking possible. Usually my slide deck comes with lots of scientific slides and a few jokes. This time it was, by design, full of personal slides, very little science (my audience was full of scientists who work on the molecule daily) and still a few jokes. 

I told my story and said thanks.

What I wasn't expecting from this small but growing biotech company based in Silicon Valley was the genuine warmth of my reception and the commitment of the team, from CEO on down, to improving the care of patients in general and those with CLL in particular. Scores of employees waited to shake my hand and introduce themselves.

I was humbled and astonished.

I am a very lucky guy.

I need to quote Gilda Radner once again.

"If it weren't for the downside, everyone would want cancer."

Remember, we are all in this together.

HEATHER AND TIM'S WEDDING

My daughter Heather was married to Tim Post last week in Chicago and I will posting a bunch of photos over the next several weeks.

I completely and totally forgot about my CLL for the week in the Windy City. For the gift of not only reaching that blissful day, but to be able to do so with no foreboding or malignant shadows but with hope and joy was a double blessing.

But my hope and joy couldn't hold a candle to that of my daughter and new son-in-law.

It was all so wonderful.

Here's a few picture to give you the flavor of what it was all about. The best is yet to come.

There are a ton more by the wonderful photographer at http://emilia-jane.com/2012/10/chicago-elopement-photographer-elope-in-lincoln-park/

I highly recommend her.

The ceremony by Lake Michigan

Patty Singing at the Ceremony

                                                         Father Daughter Dance