Tuesday, March 24, 2009


Jet Blue has a lovely new terminal next to the beautiful old untouchable and unused TWA terminal. So 60s. So optimistic. So ready to take flight.

So with the new terminal's free Wi-Fi, I am writing to say I am on my way home, with the clear message from Dr. Rai to not sweat the nodes. Let someone else do the worrying. No CT for 2 years. Wait for symptoms.

More from the west coast, later.


Blogger Rick said...

What to do? What to do?

Three experts give three very different opinions when reviewing the same scenario. This is all too typical of our situation in CLL/SLL.

As you know, I am no expert, but I would be inclined to heed Dr. Rai’s advice. There is every possibility that the transplanted T cells and NK cells destroyed all or most of your malignant B cells last summer and fall before they left the scene. (akin to NK cell infusional therapy).

Given that sophisticated tests have revealed no definite evidence of residual malignant lymphocytes, at worst the disease has been dealt a stunning blow!

If the mesenteric adenopathy represents residual disease, it may or may not become clinically significant over a period of time. If they represent PTLPD, they may regress now that you are off of immunosuppressives or may progress in due course in which case you can treat them with more chemotherapy. If you are completely free of disease, why court trouble?

One thing to consider would be a course of rituximab or Zevalin to eradicate any residual disease or to address the possibility of PTLPD in the mesenteric nodes. Although all treatments carry risk, the risk of this course is likely small.

With what you have told us to date, I would probably not be inclined to do much more than that until it became clear that doing more was necessary. The thought of being off most (if not all) medications and returning to work must be very sweet indeed!

Best of luck,


March 25, 2009 at 4:58 AM  
Blogger LISA said...

It has been great to catch back up on your journey. Love the good news and to see how G-D continues to lead you in the journey He has for you. We continue to pray for His Shalom in your heart and life as you take the next steps. Looking to the day you will be in the office again in Diamond Bar.
Grace and Peace -
The Barsamian Family - Corona

March 26, 2009 at 11:53 AM  
Blogger LISA said...

Dr. K-
Not sure if the last post posted so just wanted to let you know you are in our prayers always and we're excited to see G-D bless you on this journey. We will continue to pray His shalom for you and the family and look forward to the day we see you in Diamond Bar again.
The Barsamian's -

March 26, 2009 at 11:58 AM  

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