Monday, August 17, 2009

The Trend

Avoid decisions based on a single data point. Look to the trends. Get ahead of the curves. Plan your future.

That's the theory. As if we really have any control.

My platelets are down a bit further: 117,000 today. At this rate of fall, I will need treatment in 7-10 days for my ITP. It is truly all about the platelets.

So until then, I am going to get into the water, go for bike rides, and just enjoy stuff. I will put off the hang gliding lessons though.

Off to the Festival of Arts today.

My plan to snatch victory is hatched. I have time and my general good health and a great team and incredible support. The moves are being scheduled as I post this blog. There is a way out of here. Everything will be fine in the end.



Blogger pkenn said...

Happy to see that Brian the Dragon Slayer is back on line. Sorry you have to go back into battle so soon, but I'm sure you have a winning battle plan!

August 17, 2009 at 3:35 PM  
Anonymous Anonymous said...


August 18, 2009 at 7:50 AM  
Blogger Aimee said...

Hi. I saw your post on the BMT-TALK message board. I read some of your blog.

My son had low platelets for Wiskott-Aldirch Syndrome (WAS). He had a BMT with unrelated 10/10 donor. It worked but he has chronic skin GVHD. We considered removing his spleen instead of doing the BMT. Removing the spleen would have cured his platelet problem (but not the immune problems that often come with WAS). We were afraid that removing the spleen would have put him at more risk later on if we had to do a BMT.

It's my understanding that you removed your spleen before your BMT?

Our doctors would not transfuse with platelets unless they were 5,000 or less. Why are they transfusing you at 117,000?

I hope you get well soon.

mom to David, MUD BMT Aug 06 for Wiskott Aldrich Syndrome, now chronic skin GVHD

August 23, 2009 at 8:49 PM  

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