Saturday, August 27, 2016

ASH 2015: Dr. Jeff Jones on Venetoclax for CLL relapse after ibrutinib and idelalisib.

The happy couple standing right on the equator at the most elegant Mt. Kenya Safari Club
(Just sharing it wasn't all roughing it on our trip to Kenya. We stayed for one night where the movies stars stayed in the 30s)

I’m sort of back in the swing of things and have partially caught up on sleep finally.

This week in the Conference Coverage section, we’ve posted an interview with Dr. Jeff Jones from ASH 2015 where we discussed the use of venetoclax for those who relapse after ibrutinib and idelalisib. You can view that interview here.

We are pleased to announce that a new CLL Patient & Caregiver Support and Education Group will be starting in partnership with the Levine Cancer Institute – Morehead in Charlotte, North Carolina. The first meeting will take place on Tuesday, October 18th at 6:30 PM. Patients and family caregivers are welcome. Find out more about dates and registration HERE.

From time to time, we will make you aware of in-person meetings coming up for those of us affected by CLL, specifically:

·      Monday, September 19th at 10 AM at at The Grand Central Hotel in Glasgow, Scotland: The CLL Support Association (CLLSA) is hosting a 2016 Glasgow Members Conference. Dr. Alison McCaig a consultant in the haematology department of the Royal Alexandra Hospital will be the featured speaker. Lunch and refreshments will be served and there is no charge to attend for members. You can find out more information and register here.

·      Wednesday, September 21st at 6 PM at the New York Marriott East Side in New York City: The Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the Doctor series. Rick Furman from New York Presbyterian – Weill Cornell Medical (also part of the CLL Society Medical Advisory Board) is the featured speaker. Dinner will be served and there is no charge to attend. You can find out more information and register here.

The CLL Society has become aware of a series of unbranded patient meetings coming up in September and October (with a few more to come in November and December). CLL patients will share their personal stories, and local CLL experts will be providing a talk on the basics of CLL. A complimentary meal will be provided and parking is free. You are welcome to bring a guest.
One member of the CLL Society will be at each meeting to show a brief video and give a talk about the impact support groups have had on their CLL journey. We will also have an exhibit table and will stay afterwards to meet with attendees who may be interested in participating in a support group in those areas. We look forward to meeting you there. The first 3 confirmed meetings are:

·      Tuesday, September 6th in Rosemont, IL at the Chicago Marriott Suites O’Hare. More details can be found in the flyer. Access it here.

·      Saturday, September 17th in Long Island, NY at Homewood Suites by Hilton Carle Place, in Carle Place, NY. More details can be found in the flyer. Access it here.

·      Wednesday, September 21st in Madison, WI at Gilda’s Club Madison. More details can be found in the flyer. Access it here.

As you can see, we've been busy.

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Anonymous Anonymous said...

Those of us who are fortunate to be surviving due to ibrutinib should wonder, what happens after ibrutinib? The survival rate appears to be dismal. We hope the day never comes but I am hopeful that we will have good treatment options when it does.

August 29, 2016 at 4:59 AM  
Blogger Judy Cleri said...

Great picture Dr. K!

August 29, 2016 at 2:19 PM  

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