Thursday, February 12, 2009

Enjoying the lull

It's been calm for awhile now, but I can feel the tension rising. 

Being accustom to visiting the doctor twice a week, what the gradual transition to once a month consults has meant is that my CLL is less in my face, and the rest of my life is less tainted by my bad blood.

The trade off is that each visit now carries more oomph and I have some whoppers coming up in the next few weeks.

My bone marrow biopsy and my CT scan later this month will determine whether I am on a run away train heading for a redo transplant with all the dangerous and fears inherent in that life changing project. 

Or will I simply start my slow reintegration back into the world of the normal. Or in my case, the new normal or maybe the near normal.

I actually have appointments with six different doctors in March including two in NYC to help me set my course. Do you think I will have enough data points? 

It is sorta a big moment.

I already know the broad sweep of what will be said and done. It's the details that can kill you, and that's what I should have examined under the microscope by April Fool's Day.

3 Comments:

Blogger Alison said...

Hang in, Brian, thinking of you!

February 13, 2009 at 5:19 AM  
Blogger lisagre said...

Dr. Koffman,
I haven't checked in for awhile, and I'm so glad to hear that your dr's appts are now monthly instead of twice a week. I'm optimistic that your appts next month will bring good news. But I know that whatever news they bring, you'll handle it with your usual positive attitude and courage.
Speaking of courage, it's great to hear that you're writing and going to writer's conferences. (obviously, you have a gift for it). I just finished writing a book with a friend and we're self-publishing...so if you wind up going that route, I'd be happy to provide whatever tips I pick up along the way. Oh, and please know that I'm available if you need any input for your migraine project (although that vitamin cocktail you prescribed a couple years back is still working its magic!)
Anyway, sending all good wishes your way and have a wonderful Valentine's Day weekend!
Lisa Perlman Greathouse

February 13, 2009 at 2:08 PM  
Blogger CLL SPOUSE said...

Loved that last sentence! Write on!

February 15, 2009 at 6:02 PM  

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