More Good News
My last dose of precious immunoglobulins pooled from a host of unknown donors was almost two weeks ago.
Today before the next batch of IVIG began to coat and protect my fragile blood stoppers, my platelet count was a robust and completely normal 266,000. That is the highest they have been since August. The rest of my CBC was wonderfully boring too.
Was the time over a month ago when it didn't work a fluke?
Is there such a thing as a fluke? Or luck?
I don't think I want to start down that line of thinking. Instead I will simple savor my good fortune and the present gentleness of my path.
Labels: good news, IVIG infusion
posted by Brian Koffman at
6:17 PM
6 Comments:
It seems to me that there are three possibilities: bad IVIG, bad test, or bad body. As for me, I have adopted the following: I will not make any decision on treatment based on only one test result because I have seen too many results which are suspect. Ex, a small clinic in Houston likes beta2m data as an indicator for treatment. In one 24 hour period, my beta2m tripled: duh, is this physical or chemical. There are other examples I could give and I assume you can too.
TomD
Very good!
Well, Dr. Koffman, this *is* the season for miracles, even if for a day, a week, a lifetime. We're honored to join you on your journey. Happy news, happy Hanukkah!
~Uri & Brenda
We are SO glad to read that you are doing good! Hopefully that will help your holidays be that much happier!
Happy Hanukkah!
Dave and Ronda
You have IVIG every two weeks? Is that normal dosing? I have it every four weeks.
Just curious.
Every two weeks is not the norm. for ITP Dr. Kipps recommended the lower dose of .4 gr/k more often. Usually for ITP it is 1 gr/k or more every 3-4 weeks. The dose for immune deficiency is usually .4 gr every 4 weeks.
Post a Comment
Subscribe to Post Comments [Atom]
<< Home