Tuesday, December 10, 2013

ASH 2013: A Quick Perspective

After five frantic days of attending very detailed and jargon filled lectures full of the latest CLL news, reading hundreds of complex poster abstracts and discussing them with their authors, interviewing many CLL experts from around the world balancing their crazy schedule with the limited availability of space for the interviews, meeting with leukemia and lymphoma advocates from everywhere and forging new alliances, brainstorming with CLL experts about research design, shared decision making, and the patients' perspective, and talking with members of the pharmaceutical industry about supporting what I would envisions as the unmet needs for the CLL community, I am heading home with much hope and much to share.

This was an amazing ASH conference for those of with CLL. Expect surprisingly candid videos and challenging discussions.

I don't just ask the the easy questions. I am looking for signals that might hint at trouble down the line. I am not there to make the doctors or the drugs look good, but to dig for the truth. I am not there to throw a hanging curve ball, but to scorch a fastball on target and see how well it is handled.

That said, it was handled very well, and the for the most part, the drugs and the doctors, do look very good and the news for us is very exciting and full of promise.

So many positives, and a few cautionary tales to come.

More soon.

I will be posting several remaining videos from iwCLL, but I will be mixing in some of the new ASH stuff too.

But first, I need some rest and relaxation.

My respiratory infection is mostly but not completely gone.

Tonight will be my first chance to walk around the Quarter a little and maybe catch some Zydeco music. I can't leave NOLA sans laissez le bon temps rouler on Bourbon Street for at least for a few minutes.

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Anonymous Anonymous said...

Thanks Brian... For the tease! : )
Hope you have some good food and music before heading home.

December 10, 2013 at 9:58 PM  
Anonymous Anonymous said...

Because of all the hard work you are doing, I know they will be able to find a cure. I'm sorry you had to become one of the statistics, but on the other hand, I'm glad it was you because you will not give up until you help them find a cure. Well done job Dr. K,

December 11, 2013 at 7:52 AM  
Anonymous Anonymous said...

go to Frenchman street for music-right across Esplanade from the quarter.

December 11, 2013 at 10:55 PM  
Blogger Unknown said...

Just found your wonderful blog. I too am a patient of Dr. Kipps. Been seeing him since age 42 when I was diagnosed 8 years ago. Hope you are rid of your respiratory infection....I seem to get them regularly. I have now come to the point in the road for treatment....had a good 8 year run. Starting fcr this coming Thursday. Bit nervous and was surprised that fcr was the route Dr Kipps suggested. Well he is the expert so that's what I am doing. I am going to keep up with your blog now that I found it. Having a chance to hear your interviews is like getting a second chance to actually understand the things I ha e told at my Dr. Visits. Help for us dummies out there. Lol

January 3, 2014 at 8:41 PM  

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