Monday, May 21, 2018

I've go to admit it's getting better: More good news about my CLL (chronic lymphocytic leukemia)

Most of my blog posts can be followed here.

The full story of my CAR-T therapy, the incredible rollercoaster and the amazing results can be found there 

I have been too slow to post good news, but let me share that my deep sequencing testing done on my bone marrow biopsy at day +28 post CAR-T showed no copies of the CLL DNA. I discuss what this means in more detail in my blog posts here:  My celebrations are detailed in the previous post.

Also on the CLL Society website proper is an interview with Dr. Dearden about combos in CLL ( they are the future for high risk patients) and other topics plus tomorrow we are posting Dr. Brown on bleeding concerns with ibrutinib. The news is reassuring.

Slowly getting back into the swing of things. Went to the San Francisco CLL Society support group yesterday and talked on the phone with the NYC group where Dr. Furman made a guest appearance to help answer questions.

Feeling stronger myself.

Stay strong.

We are all in this together.



Blogger Unknown said...


February 27, 2019 at 9:34 PM  
Blogger Unknown said...


February 27, 2019 at 9:35 PM  

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