Thursday, August 21, 2008

"What's new? Probably I'm boring you" Frank Sinatra

Another clinic day. Labs remain unchanged. Mild anemia, slightly low lymphocytes, and nothing else to report. Dr Forman says I look like a teenager with my pimply rash, but I think it's better and I am not about to use any OTC acne gels. I have almost teenage blood, why not teenage skin.  Gut is good, but I still need a nap most days and I do tire easily. And I have more and more peach fuzz on my scalp.

Dr. Forman also says I am over reading the significance of my dry mouth. He does not think it is mild GVH.  Wrong timing. At least I am over reading my symptoms in a positive direction for a change.

Next Monday I get the BIG tests in addition to the standard happily boring lab. They will look for CLL in my blood and measure my degree of engraftment again. I should have the results next Thursday. This is the critical stuff that shows how much of my blood lines are old me and how much are from my donor.  I am confident of and slightly less neurotic than last time about the expected good news. A positive trend is the heart of the matter. It's  both the journey and the destination.

Soon I will be down to clinic visits once a week. Because my engraftment is so darn slow, my GVH may pop up later, so I may need to return again to more frequent monitoring. Next week's test will be a factor in those decisions.

Been learning from Dr Wendy Harpham's book "Happiness in a Storm". I highly recommend it. Very practical  helpful counsel on how to be a Healthy Survivor (not the TV type survivor, but the real life hero of a catastrophic illness).  

Watch Hotel Rwanda from Netflix.  A very fine movie. A tough inspirational movie against a hellish backdrop. It asks what really counts in life?  It asks the viewers what they would do with their life or their family's life on the line?

3 Comments:

Blogger Susan said...

This comment has been removed by the author.

August 21, 2008 at 10:34 PM  
Blogger Susan said...

Dr. Koffman,
Our Family has been keeping track of your journey. When Lisa was down the first week in June, she and Brian both called the office to give blood.
We all agreed that a good movie for you would be a foreign film called "Children of Heaven"(subtitled) It is a story with struggles, hope and love....

Keep on keeping on,
Allen, Susan, Brian,
& Lisa too!

August 21, 2008 at 11:52 PM  
Blogger rpassananti said...

When you play the game of SCT/BMT boring, dull and lackluster can be a good thing. In your case I think it is. You are doing great and I wish mine goes as well as yours. Lets see some great results next week.

Your CLL friend

Robert.

August 22, 2008 at 8:54 AM  

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