Wednesday, October 29, 2008

"it's getting better all the time" The Beatles (again)

My sore throat isn't gone, but it is better. All the time. The fatigue remains pervasive, hence the scarcity of my posting.

I am conserving energy and sleeping more. 

Only seeing Dr. Forman every 2 weeks now. Patty is not only flushing my central lines daily, but now must do the delicate sterile task of my dressing change on the week that I am not in clinic. She likes to be called doctor, not nurse. My own private doctor. I am one lucky patient.

In two weeks I will get engraftment studies repeated and another look see for leukemia in my blood. My CBC remains stable, with low lymphocytes and a very slowly improving anemia.

Where Dr F. and I disagree is as to when to do the next bone marrow biopsy (BMB). Masochist me would like that painful test in the next month, but Dr. Forman wants to wait for 6 months post transplant which would be New Year's. We both are happy with waiting until then for the repeat CT scan for he same reason: radiation exposure. One CT delivers the same cancer inducing radiation as 400 chest x-rays.

I do want the BMB sooner because we are using my disease state as the deciding factor in any treatment options, especially DLI. So let's watch carefully for any hint of disease, which means checking the bone marrow. The pain is no biggie. If it were to return, which it won't, the bone marrow is a likely front line. Kinda like Alaska, eh Sarah?


2 Comments:

Blogger Judy Cleri said...

Dear Dr. K,

I also have a sore throat this morning.....but mine is from screeming as the Ducks won in OT over the Stanley Cup Champion Red Wings.........hopefully one day soon you will have a sore throat from cheering on your Kings and not from being sick!

Praying for the Lord's blessing on you and your family and that you will be 100% very soon. Remember one thing......not our will, BUT His will be done!

Happy Thursday,

J

October 30, 2008 at 7:55 AM  
Blogger rpassananti said...

Hey, can I get Patty to take care of me too post transplant? Hand in there, the sour throat will pass and you will be back to 100%. Get plenty of rest and be a good patient, with patients.

October 30, 2008 at 10:43 AM  

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