so proud of and thankful to the patients, caregivers and doctors who wrote for
The CLL Tribune: A Quarterly Publication of the CLL Society on chronic
is full of good stuff for those at any level of their disease.
we close out another holiday season, we reflect upon the good times with family
and friends, and remember all that has been accomplished in the world of CLL in
CLL Society continues to provide education and resources to fill the unmet
needs of CLL patients and caregivers. The Society also started a number of
in-person patient support groups around the country where patients help
patients understand their CLL and cope with a cancer diagnosis. And, most
importantly in 2016, the dedicated researchers brought us new therapies in
clinical trials and FDA-approved novel biologics to treat CLL.
we look forward to the promise of more and better treatments to come in 2017.
As CLL patients, we must stay vigilant, educated, and strong. And, with more
people being diagnosed with CLL every day, we must continue to help them along
their CLL journey.
you can support our mission with an end of the year tax-deductible donation, be
assured it will be used to help more patients and caregivers and allow us to
offer more services. We wish you and your families a healthy and Happy New
Year. Stay strong. We are all in this together.
are some of the articles:
and Wait: Professor Chris Fegan from Wales "GETS" CLL
Brian Koffman and Dr. Chris Fegan discuss discussed the stress of being
diagnosed with leukemia in general and in particular, dealing with "Watch
For Watch and Wait? My Story
Kahan, a CLL patient, shares his decision to join a clinical trial testing
ibrutinib in treatment-naïve patients who are still in the watch and wait
to Do While You Watch and Wait: A Patient's Perspective
Hoffman, a CLL Patient, shares how he manages watch and wait and what works for
him: education, diet and exercise, green tea and turmeric.
You Should Know as a CLL Caregiver
Massey, a caregiver for a CLL patient for the past 10 years shares some key
elements to being a good caregiver.
Never Know: Twenty Years since Stage IV and Counting
Fried, CLL patient, uses his great sense of humor to describe how he dealt with
his initial diagnosis of Stage 4 CLL and the challenges he has faced since that
Problems in CLL
Brian Koffman reviews the fundamentals of autoimmune disease that can cause low
blood counts or cytopenias in CLL patients, potential causes and how it is
Adrian Wiestner from the National Institutes of Health in Bethesda, MD explains
what Richter Syndrome is and the available data about this rare condition when
CLL/SLL transforms into an aggressive lymphoma.
Richard Furman of Weill-Cornell Medical College answers readers' questions
submitted to the CLL Society
2016: An Interview with Dr. John Pagel on Maintenance Therapy in CLL
or watch the interview with Dr. Pagel from ASH 2016 where he shares key data
presented on the topic of maintenance therapy in CLL.
some key facts and data points about CLL
View the CLL Society ASH Poster
based on an earlier Reader Poll, Participate in a new 5-question reader poll
about testing before treatment, or submit a question you'd like addressed in
Labels: Chronic lymphocytic leukemia, CLL, CLL Tribune