ASH Abstract: Factors That Influence Patient Treatment Decision Making in the Era of Novel Agents and my Trip to Serbia
Today in the Conference Coverage section of the CLL Society website, we’ve posted a summary and link to the ASH abstract we wrote based on the results from our Reader Poll in the Q1 2016 issue of The CLL Tribune where we asked you about what was important to you when making treatment decisions for your CLL. You can view my article and see the abstract here.
Leaving on a jet plane. Economy class. Red-eye. Tight connection in Germany. Leave on one day, arrive the next in Belgrade. Landing at the Nicolas Tesla Airport.
This is another
familiar story as I’m packing my bags to attend the 2016 CLL Horizons meeting in Serbia this week. I will serve as faculty and part of
the steering committee for the newly forming CLL Advocacy Network, a global network of
organizations representing people with CLL. The main goal of this first CLL
Horizons conference is to build capacity for international patient advocacy organizations to support people
affected by CLL.
In
addition to getting ready to getting ready for the next ASH meeting, we’re also
working on the content for the next issue of The CLL Tribune. If you
have a question for our Ask The Doctor
section, you can submit it here. No question is too silly to
ask and you can be sure others have the same questions.
Patient and Caregiver Support
Meetings
November 7th @ 6:00 pm in
Indianapolis,
the CLL and Indolent Blood Cancers Support Group will be meeting. See more information here.
If
you’re aware of other CLL Patient Support Group meetings, let us know and we’ll
post them. Thanks!
Post-ASH CLL Patient Educational
Forum at City of Hope
We're
excited to announce that on Saturday, December 17th, in partnership with City
of Hope Medical Center and the Leukemia and Lymphoma Society, the CLL Society
will be hosting the second annual Post-ASH CLL Educational Forum at City of
Hope. Dr. Tanya Siddiqi will be presenting on the latest data on Diagnosis and
Frontline Treatment and Dr. Steven Rosen will present on Relapsed Disease and
Novel Therapies. You can access the flyer here and pre-registration is requested. We look forward to seeing you
there.
Patient Education Meetings
From
time to time, we will make you aware of in-person Patient Education meetings
coming up for those of us affected by CLL and lymphoma, specifically:
·
Wednesday, November 16th
at 6 PM at the Hilton Minneapolis/St. Paul Airport – Mall of America in
Bloomington, MN: The
Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as
part of their Ask the Doctor series. Dr.
Timothy Call, from the Mayo Clinic is the featured speaker. You can find out more information and
register here. Dinner
will be served and there is no charge to attend.
·
Friday, November 18th
from 7:30 AM to 2:15 PM at the Hilton Hotel City Avenue in Philadelphia, PA: The Abramson Cancer Center in
partnership with the Leukemia and Lymphoma Society will be hosting 9th Focus on Leukemia, Lymphoma, Myeloma
and Bone Marrow/Stem Cell Transplantation Conference. Dr. Anthony Mato is
the featured speaker for the CLL Workshop.
You can find out more
information and register here.
·
Wednesday, December 14th
at 6 PM at the Washington Marriott Georgetown in Washington DC: The Lymphoma Research Foundation
will be hosting Updates on Chronic
Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the
Doctor series. Dr. Chaitra S. Ujjani
from Georgetown University Hospital is the featured speaker. You can find out more information and
register here. Dinner
will be served and there is no charge to attend.
Heads Up! The CLL Society has become
aware of a series of unbranded (no specific drug discussion) patient education
meetings coming up in November. CLL patients will share their personal stories,
and local CLL experts will be providing a talk on the basics of CLL. A
complimentary meal will be provided and parking is free. You are welcome to
bring a guest.
One
member of the CLL Society will be at each meeting to show a brief video and
give a talk about the impact support and education groups have had on their CLL
journey. We will provide practical tips and support for setting up a local CLL
group and will stay afterwards to meet with attendees who may be interested in
participating in a support group in those areas. We look forward to meeting you
there. The next 3 confirmed meetings are:
In the
meantime….
Stay strong.
We are all in this together.
Brian Koffman, MD
11/7/16
Labels: ASH 2016, City of Hope, CLL Society Inc., CLL-AN, Survey
posted by Brian Koffman at
7:55 PM
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