great to meet a few of you in San Francisco yesterday. We’re looking forward to
getting a CLL Support Group going there in 2017.
in the Conference Coverage section of the CLL Society website, we’ve posted an
interview with Dr. George Follows
where he talks about the changing management
of CLL and what the patient’s role is to get the best possible care. Dr. Follows chaired the session I spoke at at the European Hematology Meeting in Copenhagen in June 2016. More than a 1000 hematologists were in attendance at our pre-meeting symposium.
Patient & Caregiver Support
NEW! Tuesday, November 1st
at 6:30 PM at the Moffitt McKinley Outpatient Center in Tampa, FL – the first meeting of a new CLL Patient & Caregiver
Support and Education Group. Patients and family caregivers are welcome. You can find more information
here! Terry Evans who does a great job facilitating our founding group in Orange County, CA will be there to help launch this one.
Post-ASH CLL Patient Educational
Forum at City of Hope
excited to announce that on Saturday, December 17th, in partnership with City
of Hope Medical Center and the Leukemia and Lymphoma Society, the CLL Society
will be hosting the second annual Post-ASH CLL Educational Forum at City of
Hope. Dr. Tanya Siddiqi will be presenting on the latest data on Diagnosis and
Frontline Treatment and Dr. Steven Rosen will present on Relapsed Disease and
Novel Therapies. We look forward to seeing you there.
I will be speaking there and sure hope you can attend. If it anything like last year's forum, it will be super.
Patient Education Meetings:
time to time, we will make you aware of in-person Patient Education meetings
coming up for those of us affected by CLL and lymphoma, specifically:
Wednesday, November 16th
at 6 PM at the Hilton Minneapolis/St. Paul Airport – Mall of America in
Bloomington, MN: The
Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as
part of their Ask the Doctor series. Dr.
Timothy Call, from the Mayo Clinic is the featured speaker. You can find out more information and
register here. Dinner
will be served and there is no charge to attend.
Friday, November 18th
from 7:30 AM to 2:15 PM at the Hilton Hotel City Avenue in Philadelphia, PA: The Abramson Cancer Center in
partnership with the Leukemia and Lymphoma Society will be hosting 9th Focus on Leukemia, Lymphoma, Myeloma
and Bone Marrow/Stem Cell Transplantation Conference. Dr. Anthony Mato is
the featured speaker for the CLL Workshop.
You can find out more
information and register here.
Heads Up! The CLL Society has become
aware of a series of unbranded (no specific drug discussion) patient education
meetings coming up in November. CLL patients will share their personal stories,
and local CLL experts will be providing a talk on the basics of CLL. A
complimentary meal will be provided and parking is free. You are welcome to
bring a guest.
member of the CLL Society will be at each meeting to show a brief video and
give a talk about the impact support and education groups have had on their CLL
journey. We will provide practical tips and support for setting up a local CLL
group and will stay afterwards to meet with attendees who may be interested in
participating in a support group in those areas. We look forward to meeting you
there. The next 3 confirmed meetings are:
Thursday, November 10th
in Metairie, LA.
More details in the flyer. Access it here.
Thursday, November 15th
OH. More details in the flyer. Access it here.
Wednesday, November 16th in Austin, TX. More details in
the flyer. Access it here.
We are all in this together.
Labels: Chronic lymphocytic leukemia, CLL, Dr. George Follows, EHA 2016