next issue of The CLL Tribune will be available on Wednesday. It’s hard to
believe it’s been a year since our first issue. Stay tuned for a special email
A CLL Doctor List is posted in our CLL
Toolbox. This list is composed of CLL physicians recommended by our readers. Thanks to those who have provided
updates and additions since we posted it. We’ll be incorporating them soon! You
can access it here. http://cllsociety.org/toolbox/cll-doctors/
It is not a vetted list, but a list from the readers.
I am in Ohio now for my every 12 week rendez-vous with Dr. Byrd and the team from OSU to check on the status of my tiny resistant clone.
I am anticipating more good news- that things are all stable, but it is always a bit nerve wracking waiting for my lab results. My palpable nodes remain small, but I am tired.
I have been under terrible stress related to my work as a family doctor. That paid work, which I love and hope to continue for many years if at all possible, supports all my activities as the unpaid volunteer medical director of the CLL Society.
I am wholly unconvinced that stress makes CLL worse. If it did, mine would have exploded by now.
From here, I fly to Tampa to meet with Dr. Javier Pinilla-Ibarz out of Moffitt to look at ways we can work together to help CLL patients and set up a support group.
Here's a little cool travel news- completely unrelated to CLL.
Guess who was standing next me in the custom lines when we returned to LAX from Lisbon?
I was not more than 5 feet away from Mic Jagger who looked thin and fit and very healthy. As I said, maybe stress and a frantic lifestyle is good for you.
Labels: Chronic lymphocytic leukemia, CLL, frontline therapy, Mic Jagger