Monday, September 19, 2016

ASCO 2016: Dr. O'Brien on what happens when we fail ibrutinib for our CLL (chronic lymphocytic leukemia)

Last week in the Conference Coverage section, we’ve posted another interview with Dr. Susan O’Brien out of UCI where we discussed an important paper that cleared up some confusion about what happens when patients fail on ibrutinib. You can view that interview here. http://cllsociety.org/2016/09/asco-2016-prior-therapy-ibrutinib-outcome/

This is a really important topic that has been badly misunderstood and highly recommend you take a look at the interview.

We are pleased to announce that a new CLL Patient & Caregiver Support and Education Group will be starting in partnership with the Levine Cancer Institute – Morehead in Charlotte, North Carolina. The first meeting will take place on Tuesday, October 18th at 6:30 PM. Patients and family caregivers are welcome. Find out more about dates and registration here.

Another NEW CLL Patient & Caregiver Support and Education Group will be starting in Tampa this fall: Tentative Meeting Date November 1st at Moffitt Cancer Center. Stay tuned for details!
From time to time, we will make you aware of in-person meetings coming up for those of us affected by CLL and lymphoma, specifically:

·      Monday, September 19th at 10 AM at The Grand Central Hotel in Glasgow, Scotland: The CLL Support Association (CLLSA) is hosting a 2016 Glasgow Members Conference. Dr. Alison McCaig a consultant in the haematology department of the Royal Alexandra Hospital will be the featured speaker. You can find out more information and register here. Lunch and refreshments will be served and there is no charge to attend for members.

·      Wednesday, September 21st at 6 PM at the New York Marriott East Side in New York City: The Lymphoma Research Foundation will be hosting Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the Doctor series. Rick Furman from New York Presbyterian – Weill Cornell Medical (also part of the CLL Society Medical Advisory Board) is the featured speaker. You can find out more information and register here. Dinner will be served and there is no charge to attend.

·      Saturday, October 8th at 9 AM at the Teaneck Marriott at Glenpointe: The Leukemia and Lymphoma Society will be hosting their New York/New Jersey Metropolitan Area Blood Cancer Conference. Dr. Anthony Mato from the Abramson Cancer Center, University of Pennsylvania, Philadelphia, PA will be speaking during the CLL breakout session. You can find out more information and register here. Breakfast and lunch will be served and there is no charge to attend. Parking is also complimentary.

Heads Up! The CLL Society has become aware of a series of unbranded patient meetings coming up in September and October (with a few more to come in November and December). CLL patients will share their personal stories, and local CLL experts will be providing a talk on the basics of CLL. A complimentary meal will be provided and parking is free. You are welcome to bring a guest.
One member of the CLL Society will be at each meeting to show a brief video and give a talk about the impact support and education groups have had on their CLL journey. We will provide practical tips and support for setting up a local CLL group and will stay afterwards to meet with attendees who may be interested in participating in a support group in those areas. We look forward to meeting you there. After tonight’s meeting, the next 9 confirmed meetings are:

·      Saturday, September 17th in Long Island, NY. More details in the flyer. Access it here.
·      Wednesday, September 21st in Madison, WI. More details in the flyer. Access it here.
·      Saturday, September 24th in Framingham, MA. More details in the flyer. Access it here.
·      Thursday, September 29th in Portland, OR. More details in the flyer. Access it here.
·      Tuesday, October 4th in Phoenix, AZ. More details in the flyer. Access it here.
·      Thursday, October 6th in Park Ridge, NJ. More details in the flyer. Access it here.
·      Tuesday, October 11th in Bloomington, MN. More details in the flyer. Access it here.
·      Tuesday, October 25th in Golden, CO. More details in the flyer. Access it here.
·      Saturday, October 29th in San Francisco, CA. More details in the flyer. Access it here.

In the meantime….

Stay strong.

We are all in this together.

Brian Koffman, MD


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1 Comments:

Anonymous Anonymous said...

Thanks for vid of Dr. O'brien. It certainly gives us hope for post-ibrutinib treatment if needed.

September 20, 2016 at 3:17 PM  

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