This is a really important topic that has been badly misunderstood and highly recommend you take a look at the interview.
We are
pleased to announce that a new CLL
Patient & Caregiver Support and Education Group will be starting in
partnership with the Levine Cancer Institute – Morehead in Charlotte, North Carolina. The first meeting will take place on Tuesday, October 18th at 6:30 PM.
Patients and family caregivers are welcome. Find out more about dates and
registration here.
Another NEW CLL Patient &
Caregiver Support and Education Group will be starting in Tampa this fall: Tentative Meeting Date November 1st at
Moffitt Cancer Center. Stay tuned for details!
From
time to time, we will make you aware of in-person meetings coming up for those
of us affected by CLL and lymphoma, specifically:
·
Monday, September 19th
at 10 AM at The Grand Central Hotel in Glasgow, Scotland: The CLL Support Association
(CLLSA) is hosting a 2016 Glasgow Members Conference. Dr. Alison McCaig a consultant in the haematology department of
the Royal Alexandra Hospital will be the featured speaker. You can find out more information and
register here. Lunch
and refreshments will be served and there is no charge to attend for members.
·
Wednesday, September 21st at 6
PM at the New York Marriott East Side in New York City: The Lymphoma Research Foundation
will be hosting Updates on Chronic
Lymphocytic Leukemia / Small Lymphocytic Lymphoma as part of their Ask the
Doctor series. Rick Furman from New
York Presbyterian – Weill Cornell Medical (also part of the CLL Society Medical
Advisory Board) is the featured speaker.
You can find out more information and
register here. Dinner
will be served and there is no charge to attend.
·
Saturday, October 8th
at 9 AM at the Teaneck Marriott at Glenpointe: The Leukemia and Lymphoma
Society will be hosting their New
York/New Jersey Metropolitan Area Blood Cancer Conference. Dr. Anthony Mato
from the Abramson Cancer Center, University of Pennsylvania, Philadelphia, PA
will be speaking during the CLL breakout session. You can find out more information and
register here.
Breakfast and lunch will be served and there is no charge to attend. Parking is
also complimentary.
Heads Up! The CLL Society has become
aware of a series of unbranded patient meetings coming up in September and
October (with a few more to come in November and December). CLL patients will
share their personal stories, and local CLL experts will be providing a talk on
the basics of CLL. A complimentary meal will be provided and parking is free.
You are welcome to bring a guest.
One
member of the CLL Society will be at each meeting to show a brief video and
give a talk about the impact support and education groups have had on their CLL
journey. We will provide practical tips and support for setting up a local CLL
group and will stay afterwards to meet with attendees who may be interested in
participating in a support group in those areas. We look forward to meeting you
there. After tonight’s meeting, the next 9 confirmed meetings are:
·
Saturday, September 17th
in Long Island,
NY. More details in the flyer. Access it here.
·
Wednesday, September 21st
in Madison, WI.
More details in the flyer. Access it here.
·
Saturday, September 24th
in Framingham,
MA. More details in the flyer. Access it here.
·
Thursday, September 29th
in Portland,
OR. More details in the flyer. Access it here.
·
Tuesday, October 4th in Phoenix, AZ. More details in
the flyer. Access it here.
·
Thursday, October 6th in Park Ridge, NJ. More details
in the flyer. Access it here.
·
Tuesday, October 11th in Bloomington, MN. More
details in the flyer. Access it here.
·
Tuesday, October 25th in Golden, CO. More details in
the flyer. Access it here.
·
Saturday, October 29th
in San
Francisco, CA. More details in the flyer. Access it here.
In the
meantime….
Stay strong.
We are all in this together.
Brian Koffman, MD
Labels: ASCO 2016, Chronic lymphocytic leukemia, CLL, Dr. O'Brien, ibrutinib, resistance
1 Comments:
Thanks for vid of Dr. O'brien. It certainly gives us hope for post-ibrutinib treatment if needed.
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