The News from the CLL Tribune, Caregiver Musical Video by Derek Caine, and CLL related Meetings
Last
week we published the latest issue of The
CLL Tribune. We’re so grateful to the patients, and physicians and others
who share their experience and expertise to enrich our CLL Society community.
If you would like to share your story, or have ideas for future articles,
please reach out to us. http://cllsociety.org/contact-us/
This is really a great collection of articles written by fellow patients and doctors. Please take a look here.
We’d
like to call your attention to a video that Derek Caine has composed to honor
and call attention to the importance of our CLL caregivers. You can check that
out here. http://cllsociety.org/2016/10/derek-caine-cll-caregivers/
This
week we would again like to highlight the content from our quarterly newsletter
and also request that you take 2 minutes to answer our latest Reader Poll to
give us feedback about how we’re doing and what topics you would like to see
covered in the future. You can access it here. https://q32016ask.questionpro.com/
Did you participate in the Q1
2016 Reader Poll in The CLL Tribune? That poll focused on the factors that influence you when
making decisions about your treatment for CLL. We felt that data was so
important that we submitted an abstract for consideration to the American
Society of Hematology. On Thursday, we heard that our abstract was accepted.
While that is really exciting for us, what’s even more exciting is that the
largest global hematology society felt it was important to hear the patient
voice. This data is embargoed until after the meeting in December, but we will
be sharing it after that. THANK YOU FOR
PARTICIPATING! Your voice is important.
·
Reading/viewing
an interview with Dr. John Pagel about the CLL Education session at ASCO 2016 in
Conference
Coverage
·
Learn
about bone marrow biopsies by Dr. Bill Wierda and read a patient-friendly
explanation of the report in The
Basics
Section
·
In
Beyond
the Basics,
learn more about the FISH test, what the results mean and how physicians use it
to make treatment recommendations
·
View
some data from our most recent Reader Poll and share with us your feedback
about the CLL Society and topics you think should be added to the website in our Ask
& Tell
section
·
In
Living Well with CLL, you can read
about:
o
Reflections on Risking a Safari
in Kenya and Tips for Safe Travel to Exotic Places when Fighting CLL
Upcoming Patient Support
Meetings
Tonight, October 3rd in
Indianapolis, IN: CLL
and Indolent Blood Cancers Support Group at 6:00 PM. More information can be found
here.
Tomorrow night, October 4th
in Tucker, GA:
LLS Family Support Group at 7:00 PM. More information can be found
here.
Wednesday night, October 5th
in San Diego, CA:
UCSD CLL Support Group at 4:00 PM. More information can be found
here.
Tuesday, October 18th
at 6:30 PM at the Levine Cancer Center in Charlotte, NC – a new CLL Patient &
Caregiver Support and Education Group will be starting. Patients and family
caregivers are welcome. Find out more about dates and
registration here.
Live in Tampa, FL? Another NEW CLL Patient &
Caregiver Support and Education Group will be starting in Tampa this fall:
Tentative Meeting Date November 1st at Moffitt Cancer Center. Stay
tuned for details!
If
you’re aware of other CLL Patient Support Group meetings, let us know and we’ll
post them. Thanks!
Patient Education Meetings
From
time to time, we will make you aware of in-person Patient Education meetings
coming up for those of us affected by CLL and lymphoma, specifically:
·
Saturday, October 8th
at 9 AM at the Teaneck Marriott at Glenpointe: The Leukemia and Lymphoma
Society will be hosting their New
York/New Jersey Metropolitan Area Blood Cancer Conference. Dr. Anthony Mato
from the Abramson Cancer Center, University of Pennsylvania, Philadelphia, PA
will be speaking during the CLL breakout session. You can find out more information and
register here.
Breakfast and lunch will be served and there is no charge to attend. Parking is
also complimentary.
·
Wednesday, November 16th at 6 PM
at the Hilton Minneapolis/St. Paul Airport – Mall of America in Bloomington, MN:
The Lymphoma
Research Foundation will be hosting
Updates on Chronic Lymphocytic Leukemia / Small Lymphocytic Lymphoma as
part of their Ask the Doctor series. Dr.
Timothy Call, from the Mayo Clinic is the featured speaker. You can find out more information and register
here. Dinner
will be served and there is no charge to attend.
Heads Up! The CLL Society has become
aware of a series of unbranded (no specific drug discussion) patient education
meetings coming up in October and November. CLL patients will share their
personal stories, and local CLL experts will be providing a talk on the basics
of CLL. A complimentary meal will be provided and parking is free. You are
welcome to bring a guest.
One
member of the CLL Society will be at each meeting to show a brief video and
give a talk about the impact support and education groups have had on their CLL
journey. We will provide practical tips and support for setting up a local CLL
group and will stay afterwards to meet with attendees who may be interested in
participating in a support group in those areas. We look forward to meeting you
there. The next 7 confirmed meetings are:
·
Thursday, October 6th in Park Ridge, NJ. More details
in the flyer. I’ll be there. Access it here.
·
Saturday, October 29th
in San
Francisco, CA. More details in the flyer. I’ll be there too. Access it here.
In the
meantime….
Stay strong.
We are all in this together.
Brian Koffman, MD
10/3/16
Labels: Chronic lymphocytic leukemia, CLL, CLL Tribune, Derek Caine
posted by Brian Koffman at
10:58 AM
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