Friday, July 18, 2008

Get back to where you once belonged The Beatles


I'm tired of the war.
I want the kind of life I had before.

Leonard Cohen

It looks like I might get my wish, at least the kind of life that involves sleeping in my own bed.

More good news.

My ANC (absolute neutrophil count) was 800 today, nearly double yesterday's result. And we know they are all donor cells,  starting their work as my fledgling immune system. Reminds me of those signs at national parks warning of fire danger. My arrow is no longer in the highest danger slice of the pie. It is now pointing to the much less scary high danger zone for infections. So instead of avoiding matches, I avoid sushi ... and salads and most fresh fruits and vegetables and restaurants and leftovers and crowds and plants and pets and colds and kids and vaccines and dust and dander and reptiles and goldfish and housecleaning. I wash my hands before and after every human activity. I share nothing with anyone, and everything is cleaned all the time, but I must leave the room or the house (properly masked of course) when it is being done.

And I get unhooked from IVY during the day if I promise to drink and drink and drink. IVY, my constant companion, gets to dance alone. But she joins me every night next to my bed, that faithful skinny friend.

My Hg dropped to 10.1,  its lowest level yet, so I need to be vigilant. And my headache is back, so I will write more later.


Blogger Sherry Sturm said...

You're like a fish unhooked, and placed gently back into the stream.
So happy to hear good news!
Sherry Sturm

July 19, 2008 at 12:36 PM  
Blogger Flow_ence said...

Your news fills my being with JOY.
Thank you for sharing this awesome adventure with such eloquence.
As I follow your entries I feel I know the this adventure has an unbelieveable outcome.
Your references to songs, songwriters and philosophers allow me to capture a feeling essence of the steps along the trail.
Love your pictures, your children, wife and friends contributions.
You make the Universe an even more special place to BE.
Keep the faith in your first 100 days and beyond.

July 19, 2008 at 1:44 PM  
Blogger Nancy Simpson said...

Brian, I read you every day. Always thinking/wishing it was ME. And, however so very glad for YOU. It is so interesting to hear about your neutrophil count (ANC). Not only has my ANC been between 400-500 for well over a year, I work in a prison with 200 male felons. Talk about germy. And, knock on wood, never sick, no infections. Weird, huh? When I heard you were over a thousand, I thought, he's made it home. He's got his homerun. You beat it. You won! Nancy

July 19, 2008 at 7:33 PM  
Blogger Judy Cleri said...

AWESOME.............This is so very cool......Congratulations Dr. K. One small step toward a long and healthy life. You are a inspiration to us all......but, poor IVY......she must be lonely, she looks kinda droopy. I wonder how she will do when you get to come home this week?

Can hardly wiat for your next update.

Whoo Hoo..........


July 20, 2008 at 7:38 AM  
Blogger Unknown said...

IVY will miss you but I will tell her that you still think about her and appreciate all that she did for you. I will put her to good use on Monday but she will not have to work as hard for me since I will only need her to hold 4 bags of goodies.

Your CLL Friend,

July 20, 2008 at 9:47 AM  

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