Thursday, September 28, 2017

Please read the Third 2017 Issue of The CLL Tribune

Welcome to the Third 2017 Issue of The CLL Tribune.
ClicK here: to read the Front Page.
We've Come a Long Way-Together.
We must be doing something that is needed as over 3000 visited the website the first day the newsletter was posted. I am proud and humbled by that response.
It's hard to believe that two years have passed since the first issue of the CLL Tribune. Time goes by so quickly. And, even more remarkable, so much has happened in the CLL community in the last two years. While effective new therapies are in use, and promising ones are on the horizon, statistics alone estimate that more than 40,000 people were diagnosed with CLL during this time. But and the CLL Tribune were both there to help the newly diagnosed, as well as the CLL veteran. More than 2,500 people subscribe to the quarterly newsletter and the number climbs monthly.
The CLL Tribune and the CLL Society's website, however, would not be possible with you-the CLL patient or caregiver who walks your own special journey with this still largely incurable disease. More than 45 of you have written newsletter articles to share your knowledge and experience. We would love to have more patient or caregiver authors - reach out to us here. Twenty-seven have stepped up to lead CLL Society patient support groups in their cities with more planned to start in the near future. More than 1,000 have participated in our patient and caregiver surveys. Plus, your tax deductible contributions to the CLL Society have helped keep our mission alive. Find out more about all the things we have accomplished together
Thank you all. Stay strong. We are all in this together.

Tuesday, September 26, 2017

CLL Ireland: Dr. Munir on Combination Therapies in chronic lymphocytic leukemia

I'm in Alaska this week with my daughter's family and just enjoyed a cold and blustery day glacier cruise. I'm finally feeling a bit better though I still have a deep chest cough. 

We have a series of CLL Educational Forums planned and have opened registration for 3 of them so far. More to come! See below for dates and locations. Registration sites will be open as details are finalized. We look forward to seeing you there.

This week, as it is the end of the quarter, we'll be publishing another issue of The CLL Tribune. So much great information! You will get that special Alert soon! 

Last April I traveled to Ireland for the launch of the CLL Ireland organization during a patient program held on a Saturday in Dublin. During that time, I had a chance to talk to Dr. Tal Munir from the UK about the research they are doing at Leeds on combination therapies in CLL. You can read my article, watch the interview or read the transcript
CLL Patient Support Group Meetings Coming Up

Tuesday, September 26th at 7:00 PM in Berea, OH - The Northeast Ohio CLL Patient Support Group, sponsored by the CLL Society, will be meeting. More information here.
Tuesday, September 26th at 7:00 PM in Rochester, NY - The Rochester NY CLL Support Group, sponsored by the CLL Society, will be meeting. More information here
Saturday, September 30th at 10:00 AM in Belmont, NC - The Charlotte CLL Patient Support Group, sponsored by the CLL Society, will be meeting. More information here
Saturday, September 30th at 10:30 AM in Tampa, FL - The Central Florida CLL Support Group, sponsored by the CLL Society, will be meeting. More information here

Note: new location for this meeting.Monday, October 2nd at 6:00 PM in Indianapolis, IN - The CLL and Indolent Blood Cancers Support Group will be meeting. More information here

ALSO - We are actively forming CLL-specific support groups in a number of cities around the country.  There has been recent interest in forming support groups in the following cities: 

Complete the interest survey and let's see if we can get one going! See what other cities are looking to form support groups by clicking here. Not listed, but interested in starting one? Email us at Thanks!

CLL Patient Education Meetings 

CLL Society Sponsored Meeting

SAVE THE DATE: The CLL Society will be hosting a series of CLL Patient Educational Forums. Mark your calendars! 
There is no charge to attend, but registration is required!
November 4th - University of California, Irvine in Orange, CA with Dr. Susan O'Brien and Dr. Richard Van Etten. More information hereRegister here.

November 11th - Cleveland Clinic in Cleveland, OH with Dr. Brian Hill 
Hill and Dr. Matt Kalaycio. More information hereRegister here.
December 16th - Swedish Cancer Center in Seattle, WA with Dr. John Pagel. More information hereRegister here

December 16th - National Institute of Health in Bethesda, MD with Dr. Adrian Wiestner.

January 6th - Dana Farber Cancer Institute in Boston, MA with Dr. Matthew Davids.

January 6th - Moffitt Cancer Center in Tampa, FL with Dr. Javier Pinella.

January 13th - City of Hope in Duarte, CA with Drs. Steven Rosen and Tanya Siddiqi. 

January 27th - Duke Cancer Institute in Raleigh, NC with Dr. Danielle Brander