The evolving role of clinical trials in CLL (chronic lymphocytic leukemia)

Hi,

As many of you know, I am alive today because of my entering two phase I clinical trials, one for PCI-32765 that later became known as ibrutinib and another for a CAR-T drug.

Clinical trials are always great, right?

Well Dr. Furman has a more nuanced answer to that from our interview at ASH 2018. And he is clearly putting the patient first.

No-one is saying that clinical trials are not the best source of evidence, but what questions are being answered and at what cost to patients need to be carefully considered.

See: https://cllsociety.org/2019/01/ash-2018-dr-furman-on-the-evolving-role-of-clinical-trials-in-cll/ for the interview.

Lots more news on the website. Hard to keep up

And please don’t forget to register our upcoming educational forums in Duarte, Charlotte, Seattle, Portland and Houston in the next 60 days.

Stay strong.

We are all in this together.

Brian 

Cllsociety.org

Upcoming free CLL Specific Educational Forums for Patients and Caregivers Across the USA

We will be holding a total of a dozen free CLL specific ½ day Educational Forums for patients and caregivers across the country over the next few months. These will cover everything from the basics to the latest research from ASH presented by the local faculty with sessions by patients too. Each one is a little different, as we rely on the local experts to talk about their CLL strengths and research.

The next one is in Duarte, CA with faculty from City of Hope on Feb. 9, then Feb 23 in Charlotte, NC, then Seattle, March 2 and Portland, March 9. I will be at all of these, speaking on being our own advocates and would love it you could attend and say hello. For more info and to register, please go to: https://cllsociety.org/patient-education-forums-coming-soon/

Later we will be at MDACC in Houston, the NIH in Bethesda, Mayo in Minneapolis and more. 

Stay strong.

We are all in this together.

Brian Koffman