Tuesday, October 31, 2017

Survey for Patients with CLL / SLL (chronic lymphocytic leukemia)

Participate in an Important Survey for Patients with CLL/SLL

  • Have you been diagnosed with chronic lymphocytic leukemia or small lymphocytic lymphoma?

  • Do you reside in the United States?

If the answer to both questions is “yes”, please read below. 

The CLL Society Inc. (CLLS) is conducting a research survey. The purpose of the survey is to help us better understand how CLL/SLL (chronic lymphocytic leukemia/small lymphocytic lymphoma) and the treatments you receive have affected your life and the lives of those around you. Your answers will be used to improve our services and patient programs—and possibly how doctors treat CLL/SLL. 
Your answers will be 100% confidential, and no personal identifying information will be collected within the survey. The answers you and other patients provide will be carefully combined and analyzed to create an overall picture of how CLL and its treatment affect the lives of people with CLL. Our goal is to understand CLL from the patient’s perspective. 
At the end of the survey you can choose to participate in the Target gift code offer. The first 500 patients who complete the entire survey will be eligible to receive a $50 gift code that can be spent on the Target.com website, or used within their stores. 
You can participate in one of two ways:
Access the Online Survey HERE
Request a Paper Survey by calling 949-667-4CLL or send an email to research@cllsociety.org and provide your name and address and a survey will be mailed to you.
Questions? Email us at research@cllsociety.org or call 949-667-4CLL
Your Voice Matters!
Brian Koffman, MD

Monday, October 23, 2017

Post ASH CLL Society Patient and Caregiver Educational Forums

ASH is the most important hematology conference and this year there is sure to be clinically relevant news for those of us with CLL. To learn the latest (and the basics too), please join me in Seattle right after ASH with Dr. Pagel and strong team from Swedish Ho. and the Hutch on Dec. 16. The same day, Dr. Wiestner and his team at the NIH in Bethesda will be presenting a similar CLL Society program. To learn about them both and all our other free educational forums register, visit https://cllsociety.org/upcoming-cll-patient-education-programs/ and find the meeting that works best for you.

I wil be at the Cleveland on Nov. 11 and Seattle Dec 16 forums among others, so please come by and say hello.

Tuesday, October 17, 2017

CLL Society, LLS and the Cleveland Clinic Present a Free Patient and Caregiver Educational Forum on Nov. 11 on Chronic Lymphocytic Leukemia

The CLL Society, LLS and the Cleveland Clinic are hosting a Patient and Caregiver Forum on Nov. 11. It is going to be a super educational experience with CLL expert Dr. Hill and others from the Cleveland Clinic there to answer all your questions. Bruce Wright is an amazing patient speaker and I'll be sharing what I have learned about self advocacy. 

Hope to see you there. Here is more information and a link to registration: