Gregg writes a great blog detailing with humor and true colors the cold realities of the trials of a post transplant journey.
In response to his response to the question"How are you doing?", which is almost always followed by: "You look so good." I wrote the following comment.
Gregg,
I too hate when people tell me how well I look. And ask with genuine concern about how I am doing. The truth is way too complicated and depressing. I may look good but I've got scary huge nodes hiding out in my guts, my bone marrow has aged 10 years in the last 3 years from the hit it took in the failed transplant, I take enough medicine twice a day to choke a T-REX to keep me "looking good", I have fatigue that you could cut with a knife, and my CLL is getting less and less responsive to my latest moves and I better think carefully of my next therapy cuz my options are limited.
But instead I say: "Thanks for asking. I am happy to be here and looking good". Which is also true.
And is also a very good place to be with still a few good cards to play and a lot of game left in me.
Stay strong bro
We are all in this together.
Brian
Labels: How are you doing?